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What is this pain?

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Crohn's Disease
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Posted 9/20/2007 8:11 PM (GMT -7)
I feel like I am posting too much, so if someone answers this question, I'll stop :)

Since this disease started, I have had this strange abdominal pain that is probably my most annoying and persistant symptom. It is the first to come during a flare and the last to leave when inducing remission. In fact, it is the only symptom I have during the past 5 years when I was in remission. I would only feel it when I didn't get enough sleep the night before.

Its hard to describe... Its definitely not a cramp. Its closer to a burning in the central abdomen. It feels like someone is opening up a carbonated beverage in the middle of my stomach. At some point, it makes a fizzling sound which is strangely audible outside of my body, and INSIDE. Like I can hear it inside my head. Like the noise is coming up my throat.

So this make me think it is my stomach right? Gastritis? Luckily I have found one easy solution: As soon as I eat, the pain immediately vanishes, usually for about 3 hours.

I have tried treating it with nexium in the AM and PM. No help at all whatsoever. The only remedy it would seem is eating. But this is a bit frustrating as the pain is severe and while I am glad that I can diffuse it in someway, i have to eat every 3 hours and I'm gaining lots of weight :)

Any suggestions?

 

Posted 9/21/2007 5:05 AM (GMT -7)
Have you told your doctors about this pain. Have they done an endoscopy. It sounds like a GERD or gastritis type of thing, but it could be CD in your stomach. I would be asking for some testing. In the mean time, try taking some OTC acid reducers like pepcid or prilosec 2xday on an empty stomach and see if that helps. And you aren't taking any NSAIDS right?
Posted 9/21/2007 10:10 AM (GMT -7)
I did have an endoscopy done... it showed no Crohn's (i.e. inflammation) but it did show non-erosive gastritis, which apparently can be an extra-intestinal manifestation (slight misnomer) of Crohn's.

Do you have your gastritis under control? I've read that Crohn's related gastritis is easily treatable but I've had no success. My only thing is that I have trouble taking the pills on an empty stomach. How important is that and what does that mean? Does that mean don't eat an hour before or an hour after taking???

What is prilosec? I've never taken that.

Thanks for your help!
Posted 9/21/2007 12:28 PM (GMT -7)
Sounds like gas build up in your stomach & small intestine. Though what could cause that, I don't know. I have GERD myself, but I've never experienced anything quite like that. I have had sensations like mice running around in my gut & stomach before. Anything like that?

Matthew
Posted 9/21/2007 1:09 PM (GMT -7)
Actually, sort of... but does it hurt? For me the pain can range from a little annoying to the worst Crohn's pain I have ever had (keep in mind I haven't ever really had a horrible flare. Never been to the ER).
Posted 9/21/2007 3:05 PM (GMT -7)
I take my Previcid as soon as I wake up in the morning, then I don't eat until much later in the day. I should take a second dose an hour before dinnner, but I almost always forget. Of course that would have to be an OTC acid reducer because my insurance won't pay for 2 doses of prescription acid blocker a day, but they WILL pay for me to spend a week in the hospital when the acid is too much to handle, go fiqure.

Any way, my gastritis keeps coming back but I refuse to go back to the hospital. The doctors continue to be baffled by the cause and keep telling me it isn't related to the CD. And when I do go to the hospital the only thing they do for me is IV fluids. Well, I can drink fine at home, so why bother. I just go to liquids for a few weeks, things get better for a few months and then the cycle starts all over again.

I hope you get things fiqured out soon.
Posted 9/21/2007 6:29 PM (GMT -7)
Hi Styx. you could try a new drug for gastritis or gerd. It's a prilosec that has a bicarbonate base, they really help ease
that bubbly, burning feeling. I'm so sorry I can't give you it's name, it's completely slipped my mind. It is a new drug
but I'm sure your doctor would have heard of it.
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