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What to expect during iron infusion

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Crohn's Disease
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nikki0294
Regular Member
Joined : Sep 2007
Posts : 219
Posted 9/21/2007 1:34 AM (GMT -8)
Doc wants me to have an iron infusion next week.  Just wondering what to expect.  I have had contrast medium w/iron during CAT scan and just experienced the flushing nauseau thing.  Hopefully it isn't a big deal.  My crohn's is in the ti.  Maybe I am not absorbing iron??

Thx

Chris

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nawlinscate
Veteran Member
Joined : Jan 2007
Posts : 656
Posted 9/21/2007 5:35 AM (GMT -8)
Is your doc giving you a one-time-only infusion? There are risks associated with that procedure--anything from just the flushing to big-time anaphylaxis (toxic shock). My doctor didn't want to take those risks, so she put me on weekly infusions of Ferlecit. I went in for an infusion each week for 16 weeks--and, several months later, did the whole thing again. Going in every week was kind of a drag, but it was also an enforced 90 minutes of rest, reading, and talking to the oncology patients around me, which was an amazing reality-check kind of experience. You might want to ask your doctor whether you can spread the iron infusion over time, rather than try to shock your system with the entire dose at once. (I, too, have crohn's in the TI--and my bone marrow aspiration and biopsy found zero--that's right, zero--stored iron in my marrow.)
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nikki0294
Regular Member
Joined : Sep 2007
Posts : 219
Posted 9/21/2007 6:09 AM (GMT -8)
Thanks for the info. I wasn't aware there are other options. I will ask about the Ferlecit. How are you feeling with the infusions. Do you have more energy? How is your Crohn's disease? What types of meds are you using. I am new to all this and still learning so much.
Thanks
Chris
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