I hope noone will withhold meds from a child. If this was my child I would listen to the GI, I would educate myself and do a lot of research and I would ask the veterans in here if the medication the doctor decides is the most "normal" due to the symptoms. And I would combine the meds with a diet.
But I would keep a close watch with my child and try to find out if there is anything else I could do to easen my childs pain and learn about
what foods he should avoid and what food he could easily digest. I would ask you in here. This is exact what I did when I first understood that I had Crohns. Some months before my diagnose in june this year. Meanwhile I found out that there is a lot of ppl. that is not using this forum or other like this. They are using diets, and they are talking in other forums. Some of them are old members from here and from other eqvivalents. Many of them uses the SCD diet or the Makers diet and have been in remission for years. Some of them also use medications prescribed by their GI's.
One of the forums that I have visited a lot lately is lowdosenaltrexone (a LDN forum) in yahoo.com. I have started up with LDN after tapering my prednisone. In this forum there are also a lot of parents with quite young kids having Crohns. They have decided to use LDN for the kids, they still continue with a maintenance drug prescribed by the kids GI.
Just to mention it; Low dose naltrexone is a medication taken once a day, only 4.5 mg. There is no known sideeffects and the dose is so low it's close to a homeopathic level. The medication is from naltrexone, given to drug users trying to withdraw from heavy drugs. They use app. 50 - 60 mg per day. On levels around 300 mg pr day they find that the liver gets problems. This drug is said holding the inflamed intestines calm, reduces the D, the bloating, the opstipation, the nausea and makes us feel fine. Just like prednisone does.
But without a lot of dangerous sideeffects.
I am not allowed to have any other medication than prednisone. And my GI will not give me more pred. Not now, I have to wait. I am so old that my bones will suffer. So for me personally the desition is easy. I have no other choice. My doctor tells me that I need a surgery. Have a narrowed intestine. I want to wait and see and try LDN and a diet. He agrees. But I would use LDN even if I could choose remicade or humira or pred. But I would find out if I could stay on a maintenance drug prescribed from my GI and at LDN at the same time. There are some combos that are ok.
And so, yes eMom, I would use the delicious SCD yoghurts ;-) with a lot of good probiotics.
By the way, I have some documents on LDN and Children. Interesting to read.
With all the best from
Ingrid's ...(waving from Scandinavia)