When this is the question from the origianl poster:
<<I have since spoken to a guy who swears that you can get by without meds if you have a diet that is free of dairy, wheat and complex carbs...have any of you tried to find alternatives to taking medication?>>
And then other posters start talking about
specific diets which some claim to "cure" CD, it suggests trying the diet instead of the medications. I was just trying to clarify that point, as that was the original question.
And no, I have never tried the Makers Diet, but have tried other diets (he's not the first person to come up with this type of diet, though he may be the first to put it in a book) at the suggestion of Naturopathics which consisted of adding more wholesome foods (fresh fruits and veggies, no processed foods) and ended up putting me in the hospital with an obstruction. I have also done extensive research on studies for many different kinds of diets, and not one shows that diet can or will help in the treatment of CD except that a low fiber diet may help reduce symptoms/obstructions during acute inflammation/narrowing.
This childs doctor instructed the parent to put the child on a low fiber diet. That is a "proven" treatment for this disease, and for anyone to suggest that the parent disregard that advice and start a diet that pushes fiber, a diet made up by a man with no real credentials, yes, I personally believe that is criminal and so may the doctor.
And as far as the Makers Diet, I have not seen any proof that this diet put anyone in remission. I'm talking proof here. The author makes many claims, but none are substantiated. I'm not saying his book is all wrong, I'm saying he's making claims he shouldn't and his products make claims they shouldn't and there have been legal actions against him regarding this. I agree with the basic premise that a more wholesome diet is probably better for us all, but I don't believe that this diet has or will "cure" anyone, and definitely should not be used instead of medications.
And as far as the legal aspect of an adult not taking medical advice from the doctor for their child, it all depends on how detrimental not following that advice will be to the child. I personally know of parents who were forced to follow doctors orders (not for CD, but for specific baby formula) after the doctor called CPS, they were investigated and then monitored for the treatment period. The only defense against this (and it's questionable) is religious belief.
And there is a big difference between a doctor suggesting certain treatments and letting you pick one that seems to fit, and directly doing the opposite of what a doctor prescribes.
And please, I'm really not attacking your choices for your son. I personally can't even imagine how hard it must be to make decisions like this for a child that is ill. It's hard enough for myself. I admire the parents who do, and hope that you're guided in the right direction for your child. I hope this diet works well for your son, and that whatever treatments you choose, he has a long remission and grows up healthy. There is no one size fits all treatment for this disease, and I hope you find the one right for your son.
I just have learned through the years and many trials and mistakes that I won't experiment anymore, that I'll let the people who know how, do the testing. Believe me, I don't believe drugs are the only answer, and I know first hand how horrible some of these drugs are. But I've seen the changes over the years and I've seen the difference these new drugs have made in the lives of people with CD, I see that we now have a future. I do believe that at this point, drugs (and sometimes surgery) are really the only treatments that can put you in true remission.