Posted 9/22/2007 1:30 PM (GMT -7)
HI LISA, I had the same problem with remicade, and was told that it happens more often when the medication is started and stopped. I can not remember the amount of time i was on and off remicade- because it was years ago. I started on humira with hopes that this was the miracle medicine for me. After 4 months on it i developed shingles and took a break rom it for 13 weeks. I now believe i am experiencing the lupus like reaction- also known as serum sickness. I had been on it weekly, and thought that i must have felt better after the injection. I think i actually have been getting progressivly worse. My problems have always been in my belly-but never the whole body ache, or my fingers feeling like sausages. I just had the blood work done to see if i have built up antibodies to humira. I will be curious to see if your doctor will do this test, or just stop the meds. Along with wondering what we will take instead if the humira. What other meds. are you on for your cd?