Joint pain caused by Crohn's or unrelated??

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Regular Member

Date Joined Jan 2006
Total Posts : 315
   Posted 9/22/2007 6:33 PM (GMT -7)   
Last night and today, I had several occurrences of mild to moderate joint pains (on my right knee).  The pains last several minutes and then gone, then came back again.  I have not had any joint pain in my lifetime and I am not taking any western medicines for my Crohn's.  
My quesion is: is this pain related to (or caused by) my Crohn's Disease?  Or it could be just pure arthritis as people get older.  I am in my 40s.  My wife, for instance, does not have Crohn's.  But she does have mild arthritis for many many years. 
I am otherwise feeling OK healthwise.  I just want to know if this joint pain is transient or it will get worse and worse? 
Than you!

Diagnosed with CD in 1994;

Currently being treated with TCM.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 9/23/2007 1:11 PM (GMT -7)   
Watch & see what it does. Especially watch to see if more joints start to hurt. Then it IS CD arthritis or maybe Rheumatoid, almost always. Or wait & see if you flare, the other major but unwelcome clue..


Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/23/2007 1:25 PM (GMT -7)   
Hi, I was just diagnosed with Osteoarthritis You may want to see a Rhemuy doctor. You can get Arthritis with Crohn's.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 9/23/2007 2:03 PM (GMT -7)   
I sure hate that you are having joint pain.It is not uncommon to have joint pain with crohns,in fact it seem's to go hand in hand with alot of us.If it get's worse I would tell your GI because it may be something else that is causing the pain like arthritis.Let us know how you are doing.

New Member

Date Joined Oct 2007
Total Posts : 1
   Posted 10/2/2007 1:41 AM (GMT -7)   


I would try this. It worked for me. Its a joint healer. Just tryin to show some love.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/2/2007 6:42 AM (GMT -7)   
I once had a Rheumatologist tell me that joint pain can be a precursor to a Crohns flare. I don't know how true that is as my joints have been killing me lately, but for the most part the gut is behaving.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 10/2/2007 7:56 AM (GMT -7)   
Yes, joint pain can be a clue your IBD is going to flare. However, the first ( & only) Rheumatologist I saw for my joint pain told me CD arthritis has a mind of its own. In UC patients, the course of joint pain almost always follows progress of the disease in the intestine. My arthritis often occurs at the END of my CD flares or after very mild, mini-flares. Once or twice, not after anything.
One thing to be very aware of, GI's have no interest in this problem. To them, treating the intestine is the way to stop it. Unfortunately, this doesn't work in CD, I don't know why they aren"t trained in this fact, but they aren't...


Regular Member

Date Joined Dec 2003
Total Posts : 494
   Posted 10/2/2007 9:53 AM (GMT -7)   

i get such horrible joint pain from my crohns that i am on a pain patch for it. its the only way i can function. i say a rheumy 2 years ago and he cleared me of anything sinister and agreed it sould be my CD. i get it in my feet, knees especially my hips and lower back thats the most excrutiating, and my hands. for now i go with the pain meds and they help so im leaving it alone.


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
Probable MS

Regular Member

Date Joined Aug 2007
Total Posts : 89
   Posted 10/2/2007 4:15 PM (GMT -7)   
Interesting that you guys say this is a precursor to a flare. I started having arthritic like pain in my left elbow in December. By March my gut was acting up and by May I was getting dizzy spells and my eyes were wacky. Bloating in June and by the end of July, finally a date with the colonscopy man, and lo and behold, I have Crohn's. So my joint pain came first. Now my gut is much worse and it seems like my joint pain is a bit better. Of course, I've lost 20 pounds. That might help the old joints too!

Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)

Regular Member

Date Joined Sep 2007
Total Posts : 330
   Posted 10/2/2007 7:03 PM (GMT -7)   
I had my first big flare at start of September (though symptoms before that) and am still in experiencing the flare.. Over the last week or so, I've had increasing lower back pain and soreness. Thought it was just random bad luck. I'm wondering if could be related -- seems too soon to start developing complications! When I saw my GI on Monday, I didn't bring it up -- just seemed like "too much" with everything else going on.

If it was CD related. is there anything they could do about it?
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone, Prilosec and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!

Samantha May
New Member

Date Joined Oct 2007
Total Posts : 1
   Posted 10/2/2007 10:42 PM (GMT -7)   
Hi all!!  My first time to this site.  I am 51, female.  From the posts I guess an oldtimer.  I had  a total proctocolectomy August 7 2007.  The best thing I ever did!  I had  had a lifetime of inflammatory bowel disease I guess my whole life.  After 6 non successful fistula surgerys and several hospital stays with my large intestine appearing as if it had been drug behind a truck for at least two miles, I took the plung.  Don't get me wrong the surgery ws hell.  I felt as if I had jumped from a plane and forgot my parachute, but I slowly healed.  I am hear to tell you, I can eat... without pain, I don't worry about an upcoming event and if I will be inflammed, etc.  You guys know that drill.  The bag thing is not so alful.  I attempted all that the gastros could muster as far as meds such as Remicade, etc.  The side effects from those drugs made me feel as if I was a cancer patient, and rightly so, because really it is the same thing.  Not to mention the inconvenience and cost of the drugs.  So, so far so good, after 2 months of taking the plung. However, I am having joint pain after surgery in my right hand.  I am not sure if it from thankfully weining off the prednisone or my body is picking on my missing colon.  What do you guys think?? Anyone out there after surgery have the arthritis flare?  Best to all!!

Post Edited (Samantha May) : 10/2/2007 11:51:53 PM (GMT-6)

Regular Member

Date Joined Dec 2005
Total Posts : 211
   Posted 10/2/2007 11:12 PM (GMT -7)   
I am very sorry you are going through this. I was wondering the same thing? I leave on the 10th of October for the Mayo Clinic in Rochester, MN. I have had Crohns for 3 1/2 yrs and admitted 27 times in hospital since then. But...In March of this yr. I started getting stiffness and pain in knees etc...then it got worse and finally my Dr. did a test for lupus that showed I probably had it too. Well he sent me to a Rheumy in a big city and he put me on pred. yet again. It stopped my joint pain and D right away. The first two DNA strand tests for lupus came back positive and the last borderline. I do not have arthritis. But since being weaned off the prednisone from 80mg six wks ago...I hurt so very bad. High fevers, the most severe joint pain I have ever had. If I don't take my pain medicine I can barely walk. My bones in the top of my feet feel like they are going to snap. My shoulders, wrists, fingers, elbow's hips, back, knees and feet all hurt so bad I can't hardly stand it. So I was wondering if it could be the crohns too? I have high white count, blood in urine, sed rate was 44 . Another inflamation rate they checked should be 0.00-0.01 and mine was 1.38. I am allergic to Imuran and asacol. I have had two doses of remicade...but it doesn't help. So Idk..I hope the Mayo Clinic can help. I hope you feel lots better! (((hugs))) Tam
we live, we love, we forgive and never give up...cuz the days we are given are gifts from above and today we remember to live and to love...
35 yr old wife and mother of 3 boy's
     DX with Crohns Feb. 2004
  Re-diagnosed with Crohns Dec. 2005

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 10/3/2007 2:11 AM (GMT -7)   



The remedy that Stevo009 copied is really good remedy for joint pain. My mother has used it, for hip trouble, she has really severe pain and is going to get an operation soon.

The name of this remedy, which you can buy in shops everywhere, is Glucosamine. It does help the joints by reducing inflamation, but it also does help Crohns inflamation. This is not a narcotic medication! It's a remedy containing certain natural stuff, that doesn't harm the body at all.

From Ingrid

Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
Using Low Dose Naltrexone from sept. 2007. See A member in the group "lowdosenaltrexone" at yahoo.
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. Don't use white sugar. No yeast in homemade breads.

Post Edited (Skjura) : 10/3/2007 3:19:41 AM (GMT-6)

Regular Member

Date Joined Sep 2007
Total Posts : 22
   Posted 10/3/2007 7:06 AM (GMT -7)   
Hello to everyone :-) I just wanted to share what I have been learning in the last couple of months.... There is a good website that has a lot of information about entropathic arthritis. It is my understanding that not all people with CD with experience this, but many will. It is also my understanding that if you did not have a DX of CD then the name for the arthritis would be spondylitis. My sons Reumy told me to go to this website to get informed,and to read a book called Strait Talk. He also said that although the CD and arthritis are both autoimune diseases and the treatment for one is often the same as the treatment for the other, that the remission or control of one will often bring the other to a flare. It is often the chicken and the egg scenerio, achy joints or stomach pain?  Anyhow, I have really learned a lot form this website, and hope that it might help some of you out too.
My 11 year old son was Dx in may of 2007, but he had symptoms of CD at age 7. He was Dx with spondylitis in July of 2007, but had symptoms at age 2. I also have a 6 year old going through testing...
Currently taking: 2 grams of Pentasa 2x a day, Prevacid 30mg, Prednisone 5 mg, Align (probiotic), and Phenergan prn.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 10/3/2007 9:00 AM (GMT -7)   
The Glucosamine thing can help, but its not a magic bullet. I know, I've used it.
I'm so lucky, I have both CD arthritis & Osteoarthritis now! Aint Life a *BEEP*!
I guess its the one autoimmune disease can trigger another kicking in. My back is KILLING me right now.

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