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just a prednisone rant...

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Posted 9/22/2007 7:48 PM (GMT -7)
i    hate    it.

after being on 40mg for now the 4th months im finally starting to wean down but its gonna take forever. i cant sleep, its messing up my bipolar, my face is so fat it hurts, i look like the stay puff marshmellow man  well woman  , i got a buffalo hump,  i cant sleep, all i wanna do is eat, i keep getting colds and i cant sleep.

ok im done.

i know someone out there understands and i just needed to vent.

thank you,

bunny

Posted 9/23/2007 12:30 AM (GMT -7)
I totally understand what you are talking about. I gained so much weight while on predisone. Took a long time to lose it too, but I mostly have now.
I have bi-polar as well. Predisone messes with it badly. The last and final time I was on it was the worse. I was so irritable and mean. I finally told my doctor that I could no longer take it. I refuse to take it again.
Posted 9/23/2007 6:21 AM (GMT -7)
Hi Bunny So glad you are starting to wean down I been on it since Jan. and know what it is like to not sleep. Wed. I will be on half a 5 mgs tab. I had to wean half a one at a time and was upped and downed but my glucose went up so getting off it for sure this time.I found that I slept at 20mgs so at least by the time you get there maybe you will sleep better how much are you weaning each week? I had terrible night sweats for 2 years that disrupted my sleep but don't have them since they doubbled my Rem. and that was 3 weeks ago.I know I didn't feel good at higher doses either emotionally so hope things go good for you and you feel better soon.lol gail
Posted 9/23/2007 4:52 PM (GMT -7)

thanks guys, i knew someone here would understand. right now we are trying 5 mg a week till i get to 20, then 2.5 a week, hopefully ill be able to go that fast. i havent in the past but im hopeful. and i cant freakin wait to go to sleep. REAL sleep and not the kind that you have to lay there for 5 hours and you pass out from sheer exhaustion or the kind where you dont sleep for 2 entire nights and cant get outta bed. and ill be so happy when my fat face is gone! :) it has messed with my bipolar and had to go up on some meds but hopefully thatll level out. the night sweats suck too, as if im not uncomfortable enough!

ok second rant over :)

thanks again

bunny

Posted 9/24/2007 2:00 PM (GMT -7)
((((BP)))) I feel for you...
Posted 9/24/2007 2:21 PM (GMT -7)

I'm there with you.  Once I got under 30mg the night sweats got better.  But I'm down to 20mg as of last Friday, and I feel like someone beat me with a stick.  I was falling asleep at 8pm last night, but I couldn't go to bed because it was too early to take my last round of pills.  All I've wanted, all day long, is to crawl back in bed, pull the covers over my head, and sleep.  And it's only Monday.  I still have to make it through four more days of work before I can sleep all weekend.

I had an appointment with my GI today, and he said that part of the reason I'm so tired is the 10 lbs I've put on since going back on Pred.  He wants me to lose them again.  How exactly would you like me to do that?  I can barely make it through my work day as it is.  There's nothing left in me for exercise.  I'm trying to be careful, but I'm hungry ALL THE TIME.  So I guess those extra 10 lbs are just going to have to weigh me down for a little while longer.

Posted 9/24/2007 5:56 PM (GMT -7)
Well one thing for sure prednisone is a hate-love drug and seem's to get a flare under control quick.The side effect can be something else but when you get winged off the moon face will go away.Please let us know how you are doing.
Posted 9/24/2007 6:42 PM (GMT -7)
thanks guys im doin ok. i think im going to have to wean 2.5 mgs a week becasue the pred gives me  severe constipation (which one owuld think woulod be a nice change) but then ill have days after that where im all inflamed from it and the dirreah comes back. idd sure as hell as like to come off faster but what can ya do. interestingly enough i think the increase in remicade has helpes becasue my swollen tummy has gone down a huge amount and i lost 7 lbs. not an easy feat on pred i know! well thats me for now imna try one more week of coming down 5mgs and if i have issues ill cut it down further. thanks for the support!

bunny

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