I had my entire Large Colon, and rectal area removed, making my ileostomy permanent.
So just when I think my proverbial break has come, even if with the cost of a permanent bag, my upper lip turns beet red, and swells outwards like Joe Camel.. At the same time, my entire genital region also turned inflamed and ulcerated..
Despite my long history with aggressive Crohns, my doctors took two years to figure out I developed OroFacial and metastatic Genital Crohns.
Now the metastatic Crohns is back, and EVEN John a Hopkins doctors, which I had to move to be by them cuz local specialists could no longer deal with the complicated nature of my rare Crohns, yet even John Hopkins can't seem to figure out who is supposed to treat me: Gastro's, the normal Crohns doctors; Urologist, cuz of where it's at?; or Dermatology, cuz it's completely separate from my intestinal system..
I'm in agony and despair.. After 20yrs of this, it's only getting worse. Pardon my French, but 'EFF!' Crohns disease!!!!!!!!!
(So I understand your question completely, but sorry, I'm not able to answer cuz even I'm not sure, hell even John Hopkins gastros aren't sure)