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Crohn's Disease
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Posted 9/24/2007 5:41 PM (GMT -7)
Hi everyone

Well I just talked to my GI over the phone.....he said that I can't take the imuran due to the vomiting and fever I had over the weekend.....he wants me to decrease my entocort to 6 and then 3 and see him on the oct. 16th to discuss what's next. I am not sure what's the next step I should take....do I want to live like this with pain? no can I tolorate  the pain? yes...is it berable? well sometimes.....if I am walking and out of the sudden I have for few sec....can I still walk? no. do I have pain before going to the bathroom yes is it bearble ,80% no....do I want to ski and enjoy myself this winter without stopping in the middle of the mountain with pain defenitly yes.....so guys what should I do???? I think my GI is thinking of remicade or humira....the thing is is that I have formed BM all I complain about is pain...so I am not sure if I should just ignore my symptoms with no meds and go on with my life or try a more powerful drug( wich I am scared BTW)

what do you all think?

Jackie

 

Posted 9/24/2007 6:01 PM (GMT -7)
Hi Jackie I'am not sure what to think How bad is your CD ? There are other meds you could try if you are against the Rem.and Hum .For me the decision was easier because of my complications. I will say that because my fistula healed I was glad I took it you are lucky you don't have that to deal with .Your age also is good because the worst side effects of those drugs happen in the young. Really it is a decision for you and your GI to make .I will say the low roughage diet helps me along with the other meds Immuran and Rem. and pred, oh the gerd I get from pred. is not good.Make the choices that you feel are best for you. Best Wishes and keep in touch. Hope you feel better soon. lol gail
Posted 9/24/2007 7:52 PM (GMT -7)
dude, seriously, if you are at your wits end, perhaps it is a time you went for broke and gave diet and organic eating a try. i know, it sounds hokey, but perhaps you've read some of the posts here. what have you got to lose. i was blown away when i saw how it worked for me and i am feeling the best immemorial now because of it. anyhoo, just a thought. it took me to hear the word colectomy to get me to really consider and give it a try. i am glad i did.
Posted 9/24/2007 9:39 PM (GMT -7)
I am going to eat better( my eating habits is not very good) but my GI told me that I can have whatever I want and if something bother's me then don't have it so that's why I wasn't worried.....so I am going to eat more fresh organic food and easy food to digest....my husband told me to consider homeopath (sp?) so I am going to call them tomorrow ....I guess I am tired of the pain and I find that the entocort is not working for me.....and I am not sure if I should base my pain before I started to be sick ....because in january( before I knew I had crohn's) I was fine no pain no nothing and if I base myself with that ...then yes I am in a lot of pain....but if I base myself in april may or even june....then it's not so bad becasue I am used to the pain now.....that;s what I trying to figure out....if should just live with the pain ...I mean I have no blood ,I have no D I haven't really lost weight...I have no fever...all I have is pain in my stomach wich it moves places constantly....ok sorry to bore you I just really really don't know what to do exept to eat better,,, and that's it....ok I think I am a bit depressed ....but I won't let this DD take over my LIFE....my passion is to sky and I don't want to lose that...I don't want to tell my husband and daughter to wait a few hours until the pain passes....I just want my life back...I find it to complicated...ok I am sorry I know some of you are way worst that me and I am not looking for pity either....I am really afraid to make the wrong decision and right now I don't know what to do and the only place I can express my feeling is here...I've learned so much in here and I am so happy to have found this site

I just want to thank you all for your support....

one thing I know...is ...Im going to change my diet tomorrow morning and eat healthier



than you so much


Jackie
Posted 9/25/2007 2:28 AM (GMT -7)
Jackie, I feel the same. I have neither diarrhea nor blood. Have not lost any weight :( either. Just the pain every day. I also consider some diet, have red about two diets that sounds interesting. The name of them are SCD diet and Maker's Diet. Both sounds good, but I think both diets craves that you REALLY want to work hard to learn making food based on clean and good products. No can food, no processed food.

As of pain; learn to avoid every food that could make stops in your intestines. Long fiber vegetables, nuts, seeds and grains. Strawberries and banana make me sick but maybe you can handle it. Write down what you eat and make a diary to follow up yourself. Chew your food slowly, drink a lot (10 cups) of water each day, drink before you eat heavy meals, and during the meal too. Sip the water, don't drink too fast. Eat 7 times a day, small meals, and never eat big and heavy meals. All this have helped me.

All the best
from Ingrid
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