I've had long remissions after surgery and short remissions after surgery and never took maintenance meds. I'm waiting for my GI appointment next week though to find out what I can take for maintenance. The thinking has changed, now they realize that while I thought I was in "remission," my disease was brewing. If I can get on maintenance meds, maybe I can hold off the disease for much longer, or even prevent another surgery. Depending on my liver and the meds, I'm going to give it a try. I hope I never have to go through another surgery.
49 years old, CD since I was a child.
Six resection surgeries, permanent ostomy, adverse reactions to Remicade, finally off of Prednisone, hoping for a long remission from this last surgery.