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Crohn's Disease
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Posted 9/26/2007 5:41 AM (GMT -8)
Hi there,

After a 4 month run of being extremely ill, I had surgery last Friday.  I had started Remicade and did two treatments, but I was one of the few that it didn't work for.  Our options were gone and we cut about one foot of intestines.  The surgery went well and I am at home now.

Has anyone had surgery and then been well for a long time with just preventative meds?  That is the thought right now

thanks so much.

Posted 9/26/2007 5:48 AM (GMT -8)

 I had surgery 3 years ago.  Foot and a half small intestine and six inches colon removed.  So far so good with no meds.

Good luck

Posted 9/26/2007 5:54 AM (GMT -8)
I had a small bowel resection 7 years ago next month and have been in remission since. Meds free going on 4 years. Good luck to you!
Posted 9/26/2007 8:38 AM (GMT -8)
I have had two resections and the only Crohns meds I am on now is Asacol.
Posted 9/26/2007 2:03 PM (GMT -8)
I have had 3 very long remissions following surgeries. Only the last time was I on maintainance med (asacol) for a few months. I stopped it myself though. You seem like you breezed thru it. Good luck with your recovery.
Posted 9/26/2007 3:46 PM (GMT -8)
I iwsh I had a long remission post op but that wasnt in the cards for me. I am 3 months after my ostomy reversal, I had no issues til about a month after the reversal, the ostomy was done in Feb after a resection when my colon didnt wake up and I lost 1/3 of that too. I now am on humira and just started that last friday, I dont know if my bidy was getting better on its own once the fistula and abscess were able to drain and placing saline gauze into the opening or if the humira has already begun its work
Posted 9/29/2007 5:24 AM (GMT -8)
I've had long remissions after surgery and short remissions after surgery and never took maintenance meds. I'm waiting for my GI appointment next week though to find out what I can take for maintenance. The thinking has changed, now they realize that while I thought I was in "remission," my disease was brewing. If I can get on maintenance meds, maybe I can hold off the disease for much longer, or even prevent another surgery. Depending on my liver and the meds, I'm going to give it a try. I hope I never have to go through another surgery.
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