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CD has moved! Now I have Rectal Activity

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Crohn's Disease
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Posted 9/26/2007 12:37 PM (GMT -8)
In one of my many colonoscopies last year there was a mention of some anal activity. But when I questioned it, my GI just said that wasn't what was making me throw up so he wouldn't even discuss it with me. Obviously, that didn't go over well with me. I've now changed doctors and am actually having symptoms, bleeding and drainage. So off this morning for another colonoscopy. Yup, I got the new diagnosis. Anal Crohns to go along with my TI Crohns. I'm more than a little mad at my previous doctor and myself for letting this go. But I did have bigger fish to fry at the time. I've had fissures and fistulas in the past and just hope that this doesn't get to be a bigger issue.

For those of you who have rectal disease, how likely is it that Canasa suppositories wil keep this in check, or even promote healing?
Posted 9/26/2007 12:44 PM (GMT -8)
I was just diagnosed a month ago and i had a horrible ulceration at the end of my rectum that was causing me excruiating pain. The GI that I saw in the hospital (different from regular GI/Chrons specialist) gave me canasa suppositiories when they sent me home from the hospital. My pain was so bad though that I was unable to use them. I went back to my regular GI/Chrons specialist about a week and half later and told him that I hadn't been using the suppositiores expecting to get fussed at. He pretty much insinuated that it didn't really matter because he didn't think it would help anyways. Ofcourse, this is just in my particular case and maybe they will work for you. I've had rectal disease for a little over a year and was just recently diagnosed and i've already had a fistula and 2 abcesses and the ulceration so we decided to start remicade to help my rectal disease. Hopefully the canasa will work for you!
Posted 9/26/2007 12:48 PM (GMT -8)
So you have anal and rectal crohns? I have anal crohns in the means of having perianal crohns skin tags, I've had rectal crohns (aka: proctitis) and the best med to use for this is cortifoam, it's better then any suppository and believe me, in my 16 yrs of dealing with this, I'm going by my experiances.

If you find it too painful to insert suppositories or the applicator for the foam (cortifoam) then get some numbing gel, it helps tons.

:)
Posted 9/26/2007 5:27 PM (GMT -8)
The doctor last year called it rectal activity. I just went back to look at my discharge papers from today and they didn't give me the ones with the pictures that called it something else. I think this doctor called it anal crohn's but now of course I can't remember exactly.

I'm just wondering if I should expect Canasa to be helpfull or not. He wrote the Rx for a month's supply with 6 refills. That doesn't seem like its going to be all that helpfull in the near future.
Posted 9/26/2007 6:12 PM (GMT -8)

         I always have Rectal & peri-anal activity during my flares. In the past Canasa ( same as Rowasa??) Enemas were a BIG help..

    Matthew

Posted 9/27/2007 5:07 AM (GMT -8)
Zanne - my crohns is somewhat like yours - started in the TI and over the years (16 years) has moved to the rectum. I have been having rectal issues for a couple of years now. The first year I was in denial and didn't really want to discuss it with my gastro. I think that is what has taken me so long to get it under control now. I didn't find the Canasa suppositories all that helpful and I really did try to make them work. You have to use them every night faithfully and it does take a while for them to kick in. I am using hydrocortisone suppositories now and am having better luck with them. I had such inflamation in the beginning that I couldn't use the cortiafoam or an enema but things are finally getting better. I am also taking Pentasa, Imuran and on Humira. Things really started getting better with the Humira. I totally sympathize with you, I have to say the rectal stuff has been more frustrating than any other aspect of my crohns. I wish you the best in your recovery. MB
Posted 9/27/2007 11:16 AM (GMT -8)
This also was another clue as to my IBD's true nature. During flares my inflammation goes down, not up. And eventually hits me in the peri-anal area.

Matthew
Posted 9/27/2007 11:35 AM (GMT -8)
Well, mine started in the anus and moved up so I guess with this DD there really is no rhyme or reason with it.

Also, not everyone expriances anal disease.


:)
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