Has anyone been misdiagnosed with Ulcerative Colitis and then found out that it was Crohns?
I was diagnosed with Ulcerative Colitis in 2001, it was bad, very bad. I spent months in the hospital and finally had my colon removed and ended up having an internal pouch. A couple of years go by and I have my ups and downs but the past year has been awful.
I am now in the same pain I was in when I was diagnosed with UC in 2001. Recent trips to my surgeon and gastroenternologist have determined that I have Crohn's and that my initial diagnosis of Ulcerative Colitis was wrong and I had Crohns disease all along. Two endoscopy's later confirms that I have a red/irritated pouch and small intestines.
I am now on a high dose of Entocort and am still in pain. I am worried that I am going to lose my pouch ad will have to get a colostomy bag. Has anyone had anything similar?