Clinical Remission?

Hi everyone, it has been a little while since I was last on here. I'm the girl whose doctor told me that having Crohns was like being retarded. Anyways, I had my first flare in Feb and was Dx with Crohns. Now 8 months on I had a colonscopy, endoscope, Barium swallow follow through and whole bunch of other stuff. My new GI said there is no sign of inflammation and no scar tissue which leads him to believe that it was never Crohns to start with. THat I came across some super bacteria. All the scans and blood work were normal. He said that if it were Crohns back in Feb that it is almost impossible for me to be in Clinical remission today. Now I know I should be thrilled by this news but somehow I'm not. Did I go through all that sh** with Prednisone and other meds for something that could have been cleared up with antibiotics? I'm frustrated now because if it isn't crohns, whats wrong with me. I still have horrible abdominal pain but nobody can tell me why. Which doc do I believe the GI specialist who thinks its not Crohns, or the GI specialst that treated me and says that it is crohns. I'm confused.

I would tend to believe the doctor that told you you had Crohns as well. In August I had a colonoscopy because I was having lots of rectal bleeding, and the doctor performing the scope said she could find no signs of inflammation anywhere despite the blood, so I was sent home. In September I had gotten worse and had to end up having exploratory abdominal surgery. The surgery showed an extremely inflamed colon, and a subsequent endoscopy confirmed that there was severe inflammation in my gut. I think it would be better to go with that doctor, especially if s/he would be willing to treat you for your symptoms rather than brushing you aside. Anyway, hope you get the answers you need. Take care.

I feel your pain and confusion. I was positively diagnosed 18 months ago, when thru all the meds, and all my following tests have shown nothing, to the extent that my GI doesn't think I had crohns, but I have been in pain everyday since the beginning. NOW he looks back at my initial tests and says, well, let's give it one more shot and I am newly on humira, just to see if it helps! I love my GI as he never gives up, but living like this could make one nuts!

where is your pain? have you ever had any surgeries? yp

• you need. . . . the magic pill cam. And/or IBD serology.

Maybe this is a new thread, but I have a question about serology. My GI told me that they sent some special bloodwork out and that my "serology" came back indicative of Crohn's, although he said the tests weren't "perfect" and that my other testing and symptoms corroborated these findings. Reading the posts above I'm reminded that I didn't follow up with him on this (I was really sick at the time).

What is the serology he would have had to send to a special lab? Some type of antibody test? I thought there wasn't a blood test for Crohn's? Any insights?

Yogaprof- do you think the treatment you had with prednisone and remicade was incomplete in that it reduced the CD to microscopic level only? In other words, it worked, but not quite good enough. Assuming I don't have visible disease in my small intestine (never had the pill cam and the SBFT was normal 4 years ago) my problem must be microscopic level and it has caused me a lot of misery in terms of pain. I hope Humira helps you.