I'd believe the specialist who says it is Crohn's. Clinical remission is nothing more than the Crohn's lesions, inflammation, whatever, being hidden from easy access and viewing. It often has nothing to do w/the symptoms you experience. Too many gastros are satisfied if they can't find signs of Crohn's despite the patient still suffering symptoms.
Biopsies in the wrong area, a pathologist not experienced w/recognizing Crohn's signs, etc., etc. Some jerk gastros even consider mild inflammation when they see it clinical remission. The SBFT is only as good as the radiologist reading the films and if he's not experienced in dealing w/and recognizing Crohn's signs .....
H*ll, I had one veteran radiologist say in his report that the small intestine was "normal". Yeah, right. Normal. After a resection in which the diseased area was just looped over and bypassed years ago. Believe me, even "I" can see that resected area on SBFT films! One SBFT radiologist thought that area was a possible Meckel's diverticulum. (At least he recognized the small intestine wasn't "normal"!!!)
I even ran into one SBFT radiologist who considered that SBFT normal because there was no change from the previous SBFT that DID indicate some Crohn's involvement!!
Crohn's tends to move UP the GI tract so even the colonoscopy that didn't find any inflammation at the TI could have easily missed inflammation that had skipped UP the TI and out of scope range.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Post Edited (CrohnieToo) : 9/29/2007 5:44:12 PM (GMT-6)