Help! I need your feedback

I am desperate! My almost 8 year old has been sick since she was five. It started with a vague stomach ache that turned into excruciating bouts of pain. I thought it was appendicitis but they kept finding other infections and would give her tons of antibiotics and she would be fine. The last bout i made them give her a cat scan it was appendicitis and it had ruptured. I thought ok we are fixed it was the appendix all along. No it started again right after she got better from the surgery and infection. This brought us to the pediatric gastro. Test after test has showed nothing she is scheduled for a colonoscopy next Monday. These are her symptoms terrible stomach pain that lortab wont take away, bouts of diarrhea that sometimes has no color, bouts of fatigue, she is either freezing or is having hot sweaty flashes, she had blood this week it was just a little but it had the consistency of mucous, she says her bowels feel like they are on fire and crampy. This last bout she lost five pounds and can't put it back on. I have to carry a bag of pain pills wherever we go cause you never know when it is going to hit. Could this be crohn's? I would appreciate any comments. Thank you for your time!

Welcome to Healing Well, pattymary! I'm so sorry that your daughter has been so ill. As a mother myself, I totally understand the frustration and worry that goes with having a sick kiddo.

I think you are on the right tract with the colonoscopy. It really gives the GI the best view of the interior of the colon and possibly the lower end of the small bowel. While her symptoms are like those found in Crohn's, it is impossible to known until the testing is complete. Hang in there! I hope the docs find the cause of her problems quickly.

We are having a bad attack today. Her pain is coming and going. Half and hour a little pain the next half hour screaming pain that is not being controlled by lortab. Waiting to hear from the doc on whether she needs to go to the er. Keep your fingers crossed!

Patty, I just read this thread and i am so sorry you are going through this! I have been there and it is so hard to watch your child suffer. I hope that you are able to get the answers you seek and excellent care for your daughter. You are in my thoughts and prayers.

Nat