Hi Frazier, I haven't seen you here for a while, and I have been looking for you.
I read you are well, and I am so excited that also you have started using Low dose naltrexone, LDN. I have only been on it for may be 9 days. I tapered off of my first medication ever for Crohns, I got my dx this summer. I had pred for almost 3 months and followed the GI advices all the way. But I have decided that when the prednisone had done it's work (and maybe damage as well) I would go for LDN.
I have already got nice changes due to my intestine's problems. When I had 14 days left on the prednisone I started to get my problems back, little by little. I had an obstruction, I got the D and the pain. And of course the bloating and the pregnant look. So when I had finished prednisone I was really eager to start.
9 days aren't that much, of course I understand that this could be a placebo reaction, so I have to wait and see ...maybe untill I have increased the dose to 4.5, I am still on 3 mg. My changes untill now are reduced BM from 3 -4 times a day to only once a day. The BM was D or mixed. So that wasn't the biggest problem. But it's ok that this is normal now. Reduced pain. I haven't got the after dinner pain anymore. No bloating. I still, and of course get -now only a little pain- if I have eaten some fiber rich food as brocolli and bananas, cause I've got a narrowing with a possible stricture.
I know that there are some more ppl in here that have started or wants to use LDN. Could be nice having a thread in here, it could actually make some more interested in this medication.
I have also learned that we need to change our diet to help ourself and by that take more responsibility to change our health. So I use probiotics, I have reduced my milk intake, I make home made scd yoghurt and I have started to bake my breads without yeast. I also avoid white sugar. I also use cod liver oil, multivitamines and B-total, in addition to 1000 mg C-vitamine per day. I have been thinking that if I do that may be LDN will do the rest.
I am going to take tests later, it's better to wait some months before I do so. Did you start on full dose at once or have you used less, and then increased? How long did it take before you increased the dose?
With all the best from Ingrid
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo.
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. Don't use white sugar. No yeast in homemade breads.