Thank you everyone for your kind words. I will keep you all posted and let you know if the remission is long lasting.
Good luck to everyone who is willing and healthy enough to try LDN. I must say, it is not for everyone, because you must not be in mcuh pain, because you can't be on opiates, and not all of us are that lucky...
Oh, and Skjura, I have been on LDN for over 8 weeks now, not 9 days, although I did oddly feel better my 2nd week over my 1st, 3rd, and 4th. random chance, perhaps?
Also, one last thing, I NEVER recommend quitting humira or remicade without having a plan with your doctor. It is much like quitting prednisone (symptom relapse wise), without all the hypo-adrenal side effects. Your disease may relapse just as bad or worse than before you started Humira/Remicade. It is something I have observed in myself and through friends....I am sure those that know when they need their next shot/infusion because of symptoms can relate to this...thats what makes the jump to LDN a little tricky for some people.
I am also still on anti-MAP antibiotics, 4 months now, not Dr. Borody's cocktail but similar, but I have a feeling that it was the LDN that put me in remission. I will have a colonoscopy in a few more months to see if I have any endoscopic healing. Recently MAP was visualized in human macrophage cells by oil immersion microscopy. This means that the whole direction of Crohn's research may turn from immune suppressing to immune boosting, but it is too early to say for sure.
Post Edited (fc1001) : 10/2/2007 1:24:18 AM (GMT-6)