fistula is back

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 10/1/2007 4:15 PM (GMT -7)   
Hi all,
Well the other week I saw the colorectal surgeon that was covering for mine while mine was on vacation.  The hole on my belly was 2cm by 2 cm deep.  about 5 days later I was still gettin gpus out but the feces had stopped.  Yesterday I went out to eat with my husband since our anniversary was today.  I had a small amount of salad but I had been having some lettuce and tomato on my sandwiches at work with no problems.  The pain began last night again in the same area as before.  Today I was in severe pain all day even with taking Dilaudid.  After work today I peeked under my bandage and saw feces mixed in again.  When I got home I changed my bandae again and found that the size of the hole is as it was a few days ago (about 1cm inat its widest point and 2 cm deep still).  I notice every time I placed a qtip in it to clear out the pus and poo more oozed into the hole.  I also noticed when I massaged the area that hurtr, gently pressing on my abdomen as if I was milking it more would ooze out also when I would push as if to have a BM or pass gas the same would happen.  My DR isnt on call tonight and the 1 who is would just tell me to go in tomorrow which with my schedule at work this week I cant plus I know my DR was baffled why they didnt do any testing such as a CT scan or MRI to locate the actual loaction.
I am in so much pain I keep saying I want to die when I really dont but this pain is awful I cant even walk upright.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/1/2007 9:44 PM (GMT -7)   
Hey Dragonfly,

I know you want to fight this disease with everything you have and live a normal life. But, do you really think you should be working right now? I know you are married... can you live on your husbands income and have health insurance until you are better? Do you have disability insurance? If you decide that you do have to keep working, even if it is for your sanity, please please please, put your health first. You say you have told some people about your crohns. I understand that you are not going to want to say you have poop leaking out of your stomach. But... you need to tell your boss that you are having serious complications and if you are going to keep working you need to be able to leave for doctors appointments. If you keep your appointments and stay home when you need to you might be able to work. If you ignore your health you will wind up right back in the hospital and not be able to work at all. Please take care of you. I know that is so hard with a new job, but remember there is nothing more that matters in life than your health.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/2/2007 5:41 AM (GMT -7)   
Hi Your not having a so good day hope today is better .It does take some time for the fistula's to heal and the stuff coming out is probably a good thing al least it is draining for now. My pain stopped after it closed but it was not severe pain. Sure hope things improve soon how many Hum. doses have you had so far? Let us know how you make out today. lol gail

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 10/2/2007 7:04 AM (GMT -7)   

Geez.....You ate salad? Twenty lashes with a wet (low residue) noodle. I hope you aren't blocked. If you're in a lot of pain, go to the ER get some pain meds and have some tests done to see where you stand.

49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 10/2/2007 4:51 PM (GMT -7)   
I called my colorectal surgeons office today but he was in Sx all day and has not gotten back to me. I will call the office again in the morning. My boss does know about the CD and the complications I have been having and even asked me at the end of last week (she is on vacation this week) how my CD was doing being that I am working again etc. Last week I was doing well. I actually gained about 3 or 4 pounds last week only to have lost 1 or 2 this week. Eating bland again, plain turkey snadwiches, plain roast beef sandwiches with sides of plain white rice. Lots of water, english muffin in the AM and pasta at night. I have been having BMs even with the severe pain and fistula drainage. If My Dr wants me to go in to see him I have no problem leaving work early even if my boss isnt there or changing my schedule around for the following day so I can make the appt on time. They are being flexable with my Dr appts as I am tryingto make them all last appt of the day.

I have only had the 1st loading dose of humira so far I get the 2 shots this Friday, and see my GI and colorectal surgeon next week. Also with me working where I am now I have more leverage when making my test appts (ct, mri etc)

I no longer have TDI money and even having a hard time getting my unemployment approved for those weeks after I was laid off from my old job...they now want another note from the surgeon. Then it goes into deliberation then I get a decision. My husbnad and I cannot make ends meet with me not getting $. Bad enough all month we have been getting food, my scripts, paying bills on the credit card.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 9:27 AM (GMT -7)
There are a total of 2,904,388 posts in 318,748 threads.
View Active Threads

Who's Online
This forum has 158141 registered members. Please welcome our newest member, jane56.
374 Guest(s), 21 Registered Member(s) are currently online.  Details
NicHostetler, notsosicklygirl, RedLabel, Hopeful86, PeppermintTea, celerity-dad, tennisplayer, Devaa, Kat1000, 1000Daisies, Bull101, jane56, OptimisTick, Jay79, cr3ativegirl, ks1905, PA_grandma, SharonZ, PNWBoarder, Davidh86, ttool