I called my colorectal surgeons office today but he was in Sx all day and has not gotten back to me. I will call the office again in the morning. My boss does know about the CD and the complications I have been having and even asked me at the end of last week (she is on vacation this week) how my CD was doing being that I am working again etc. Last week I was doing well. I actually gained about 3 or 4 pounds last week only to have lost 1 or 2 this week. Eating bland again, plain turkey snadwiches, plain roast beef sandwiches with sides of plain white rice. Lots of water, english muffin in the AM and pasta at night. I have been having BMs even with the severe pain and fistula drainage. If My Dr wants me to go in to see him I have no problem leaving work early even if my boss isnt there or changing my schedule around for the following day so I can make the appt on time. They are being flexable with my Dr appts as I am tryingto make them all last appt of the day.
I have only had the 1st loading dose of humira so far I get the 2 shots this Friday, and see my GI and colorectal surgeon next week. Also with me working where I am now I have more leverage when making my test appts (ct, mri etc)
I no longer have TDI money and even having a hard time getting my unemployment approved for those weeks after I was laid off from my old job...they now want another note from the surgeon. Then it goes into deliberation then I get a decision. My husbnad and I cannot make ends meet with me not getting $. Bad enough all month we have been getting food, my scripts, paying bills on the credit card.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987