Crohn's Charities? Other than CCFA?

Hi everyone,

Do you know of a nonprofit that benefits those with IBD?  I'm looking for an alternative to CCFA for making a big donation.

Thanks!

Carly

You could also earmark a donation to CCFA for a specific purpose, for instance to be used only for research.

Dr. Hermon-Taylor in England, who is working on a Crohn's vaccine, is also accepting donations.

Oy vey... if you do a search Im sure you will find our many debates but I will try to sum it up for you... (these are estimates from memory) 20% goes to research, 70% to patient education and support, 10% to costs.... The debate is whether they are donating enough towards research. Some feel that since they are supported by drug companies they are more likely to put the money into support and less likely to put it towards a cure. However, almost all of the research break throughs have had the CCFA backing it. Granted, most of these break throughs were found in looking for a new drug. But every new breakthrough is a step closer to a cure.

The reason I posted the question is this - I've supported CCFA in three cities I've lived in since I was diagnosed. However, since I moved to my current city, I've had nothing but trouble with the current chapter. They would not help me when I asked for doctor recommendations, and though they promote their support group online, it's actually been defunct for more than 5 years. I offered to help start a support group and so they put me in touch with other people my age, but when we actually started the group they refused to support us in any way. The whole thing was so negative.

But - it's the only charity I know of, so when I came across an opportunity to raise several thousand for them, I called to ask if I could give out flyers at the next CCFA event. They basically told be to suck it.

I'm so frustrated that I don't know what to do - they won't help me, and they won't take my money. You may read this and think, "this person's nuts, it must be her problem and not theirs" but truthfully every person I've met with CD or UC in this city has had a similar experience, AND my doctor told me on my first visit to stay far away from them.

It is so, so sad.

jdiane - sure, what's your email?