I finally taked to my colorectal surgeon today. Initially he wanted a SBFT then when Iactually spoke to him not hisa receptionist I informed him of pain as weel as less BMs and needing a suppository last night. I am still passing gas naturally so it cant be a full obstruction, I hope its just the fistula and nothing else. I got 2 wound managment samples from hollister but the opening is only about 1cm and it goes 2.5 cm deep.
Today I ate an english muffin for breakfast and some black tea. For lunch I had a roll, one of those chicken soup campbell bowl things and some crackers. After lunch I changed the bandage then I felt wet later....the fistule is right below my off center belly button....thanks to Sx it is off to the right a bit....the fistula is at the actual scar in the center right below where a normal belly button would be. I went to the restroom to urinate and found that the feces went right under the paper tape causing feces to get on my underwear and scrub pants. I had no change of clothes so I cleaned up best I could and was happy that I wore navy pants. I just ate some hamburger helper...still trying to get iron from food...I am not lactose intolerant so we had cheeseburger macaroni.
The CT is set for 5pm tomorrow. I called my Dr back after I set it up(he is on call tonight luckily) they told me to drink one of the contrast drinks at 8am, and NPO after 2pm. Drink the 2nd contrast at 4pm. My Dr found that to be odd as well. He is going to call the radiologist in the morning to verify the way to drink them...its my 20th one in a year and I have always done 1 drink 2 hrs pre ct and the other 1 hr pre ct. Since it is hard getting thru to my line at work he is going to send my order by fax as well as the instructions the radiologist gives him.
My skin is getting raw again from the feces getting on my skin and the skin prep isnt working to prevent that from happening so a GI that was in the office the other week when I went for my Humira loading dose told me to try desitin, so I am trying that.
I am just so frustrated. Luckily at work they are very understanding. I left a msg with my team's nurse since our nurse manager is on vacation. When I left I was still set for a SBFT at 8am so I called saying I will be inearly and will have to leave at 4:30 so I can register and get to the appt on time. Luckily I work at the hospital but in a building that is right along side.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987