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any idea what this might be???

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Crohn's Disease
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Posted 10/3/2007 8:54 AM (GMT -8)
hey all.   I have an place in my perineal area that is protruding slightly (under the skin) towards my vaginal area and is swollen and painful...especially if i strain the wrong way in my bottom.   I have an appointment with a different GI on the 15th...not really happy with my current one......anyone have an idea what this might be?

 

christina

Posted 10/3/2007 8:56 AM (GMT -8)
I'm not sure but it sounds like a skin tag. Quite common with Crohn's. My daughter has one. Luckily I don't have one yet.
Posted 10/3/2007 9:23 AM (GMT -8)
I have never had one, but could this be the beginning of a fistula. Or possibly a ganglion cyst too. Maybe try either taking a bath as hot as you can stand it, or place a hot compress (as hot as you can stand it) a few times a day to area. If a ganglion cyst or ingrown hair it will come to the surface and pop and relieve some of the pressure. Since I have never had a fistula, don't know if that has the same effect. Sure hope you figure out what is going on soon. Keep us posted.
Posted 10/3/2007 9:26 AM (GMT -8)
P.S. Noticed in your medication list that you are taking Advil for joint pain. I don't know if you know this or not, but Ibruprofen, Aleve and those types of NSAIDS are a big no-no for us Crohnie's (only allowed Tylenol or prescription pain meds with out those NSAIDS in them). You really should get in to see a Rheumatologist about your joint pain. They can help you with medications that are okay for our guts.
Posted 10/3/2007 9:41 AM (GMT -8)
Get your doc to check out your lump.

:)
Posted 10/3/2007 10:44 AM (GMT -8)
My first fistula was exactly like what you described above, lump in perineum-close to the vaginal opening, swollen, hot and painful. Once it started draining (out the rectum) it felt better but had to have surgery to fix it. Also I agree with above, the advil is a big no-no. My gi wouldn't even let the surgeon give it to me after surgery for anti inflamitory. Absolutely refused to let him! You should ask your gi about it and get that 2nd opinion.
good luck!
Posted 10/3/2007 1:05 PM (GMT -8)
Sounds to me like you might have an abcess... Mine started just like that. A bump that was very very sore, I waited about a week and half and the pain was so bad that I couldn't even walk. It also hurt after I had a BM or even had to pee.
Posted 10/3/2007 1:23 PM (GMT -8)
Thanks everyone for your help :)
Posted 10/8/2007 5:40 AM (GMT -8)
so now... where the spot was bulging there is now a small hole the size of the head of a needle right below my vaginal opening. There's no pus but i find little spots of blood on my underwear. Is this a fistula?
Posted 10/8/2007 7:36 AM (GMT -8)
I don't know as I don't have experience with fistulas but it doesn't sound good. I don't think you should wait until the 15th. Do you have a gynecologist? This would be within his/her area of expertise.
Posted 10/8/2007 7:53 AM (GMT -8)
I originally went to my gyno when I found my lump(had never had fistula before that) and she looked at me all cross eyed and said she didn't have a clue, to go to my gi. I would save time and go right to the gi, call and tell them what is up and try to get in sooner!! The quicker it can be taken care of the easier it is to fix and heal.
Posted 10/8/2007 9:04 AM (GMT -8)
i am going to my gi today...i'm scared....in fact..all of this is still scary to me.
Posted 10/8/2007 9:30 AM (GMT -8)
my enterocutaneous fistula was like you describe your bump. I had a localized infection where this fistula was from a suture from Sx. It healed at the begining of Sept. Then a cpl weeks later I was having severe abdominal pain and that night I used my heating pad to help the pain while I slept. When I awoke the area that had healed was swollen again and when I would thump my finger on it it sounded hollow. After my shower I was able to gently tug at the skin and a river of pus drained out. I treated it as I had done before how my surgeon had told me. This of course happened on a sunday and my surgeon was on vacation the whole week so i had 2 see a diff doc. Later that sunday night feces began draining from the hole and it was in fact a fistula. It stopped draining feces a few days later and was getting smaller and just pus was draining. Then 1 week ago today feces started coming out of it again so my doc had me ggo for a CT scan to rule out any abscesses since I had a cpl after my ostomy Sx and it was similar pain as I had then. I have since had the ostomy reversed and that is when I began with the fistula etc. If it is any type of abscess, pimple, or ingrown hair heat applied to the area will make it come to a head.

Hope you feel better soon
Stef
Posted 10/8/2007 10:27 AM (GMT -8)
I had a lump the size of a walnut in my lower right groin for a few years Several providers told me it was a lipoma and unless it grew very large, which it could, or it was painful, leave it alone. I felt it had grown some and was a little tender so I asked the new gyn I saw in December his opinion. He said not to assume it was a lipoma and have it checked out whch meant going to a surgeon. I did that and the surgeon told me he thought I had a hernia and scheduled me for a laparoscopic hernia repair.

Came out of surgery to find out it was not a hernia at all but what they were calling a "hemorrhagic cyst", filled with bloody fluid. he said he searched around and could not find any connection to the inside but that these things can be very tiny. I asked him "could this have been a fistula?" and he said "I don't think so" I'm still wondering.

How likely is it that an enterocutaneous fistula would not break through the skin and just keep growing for years? Or, why would anyone have a collection of bloody fluid. It was not in an area where I could have injured it without knowing.
Posted 10/8/2007 3:47 PM (GMT -8)
well..the doc said it is a fistula. He gave me an application to the remicade assistance program so i can get started on remicade. He gave me a Rx for flagyl....taken it before...don't think i liked it...
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