Basically, I'm looking for a Doctor that understands and prescribes the necessary pain meds.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jul 2007
Total Posts : 188
   Posted 10/4/2007 6:38 PM (GMT -7)   
I have had Crohn's for 21 years., I work full time (Don't know how long this is going to last)  I have this Authritis im pelvis, tailbone, and hips -  Will be going to a Rheumy soon and will know more.
I had the same GI Doctor for 15 yrs. and two years ago wsithed to a dr. that is closer to me.  I asked him ONE time to give me LORTAB for pain.  At the time I had kidney stones, not to mention Crohns & joint pain.  What the H--- does it matter. 
Well, I went to pick up my medical records to go back tomorrow to the Dr. I had for 15 years. and now he gets to read this portion of my medical records.  Now, he is going to immediately think that I am som sort of pain pill addict.  This is ashame.  I am working full time and going to Graduate Schooland raising a family.  I think if I have "fake" probems then maybe he needs one day filled with Crohns Disease.  Obviously he has no idea what we go through!!!!!!!!!!!!!!!
Who is that Doctor in Atlanta area that everyone raves about?  I believe his first name is Douglas...

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/4/2007 6:42 PM (GMT -7)   
For the pain meds go to your family doc. Gi's are so bad about prescribing them. I always get mine from my PCP. Hopefully the Rheumy will help too. God Bless.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Sep 2006
Total Posts : 146
   Posted 10/5/2007 9:30 PM (GMT -7)   
Me too, My GI will not give pain meds at all. I could be crawling on my knees and he wouldn't give pain meds because as he says,"it masks the symptoms" Well my feeling is, when you are in as much pain as we get in we need something to stop the tears from flowing and to calm down. My family doctor prescribes me vicodin prn for my crohns. I would find a family MD and just explain your crohns sx to him and explain that NSAIDS do not work because they actually make crohns worse. Believe it or not, many doc's still try to give me NSAIDS for pain control even though I have crohns which is a no no! I hope things get better. I had an ER doctor write something similar in my hospital chart too. Good luck.
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2007, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007.  Now receiving Humira, Topamax 300mg daily, Cymbalta 120mg daily, Prevacid 30mg, Maxalt, Vicodin and Ultram as needed, Fish Oil, and Multivits   

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 10/6/2007 2:21 AM (GMT -7)   
Hi my GI is the one whom gives me the pain meds. He has no problems prescribing then.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 10/6/2007 4:33 AM (GMT -7)   
I get mine from my family doc as well
Have never had a problem with getting proper TX and Meds for Pain

    Contribute today to support Healing Well Forums...Donate @
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
          Be Thankful for the Difficult times..During those times we GROW
                 EMPATHY is Always Better than APATHY
                 " Friends Are Cheaper Than Therapists "

Veteran Member

Date Joined Aug 2004
Total Posts : 1169
   Posted 10/6/2007 12:15 PM (GMT -7)   
AS all the others have stated your best thing for pain is with your family doctor--GI'S are just not going
to give pain meds. even though they are suppose to understand our pains???figure??good luck with
the family doctor---georgialady
crohns since 1994-retired--imuran,remicade infusions--now severve crohns
fistula on terminal,high blood preasure diabetes,thickening around the upper stomach wall to bottom--have had asacol,carafate,coreg,dyazide,aciphex,ambein 10mgs. lopid and glucotrol10mgs.zanax.05 and now perocet-5--- depression
anxiety and never ending pain--with osteo-arthritis ..god bless us all.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 10/6/2007 1:53 PM (GMT -7)   
I would suggest you ask for a referral to a pain clinic. I suffered for years not willing to take anything for the pain because my kids were little and I didn't want to compromise the care I could give them. when they got a little older, I finally had to give in. Well after several years of getting pain meds from my PCP who was also my GI we would get into a battle about how often he would give me a script and how often I was in pain. The classic, we can't find enough active disease to justify the amount of pain you have. Well you know what, I HAVE pain. I'd been dealing with it for years and was no longer willing to just live with it. When I asked for a referral to a pain clinic, it just made my life so much better. I no longer have to worry, will he or won't he write me a script. I go every 4 weeks, we discuss how things are going, they give me a script and off I go. Some pain clinics use different meds to help depending on what type of pain you have, the degree of pain, the duration of pain. Its very tailored to your needs. No judgement, just help.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 10/6/2007 3:34 PM (GMT -7)   
I just finally asked my gastroentrologist about something for my terrible abdominal pain about 2 months ago. Until then I had been taking ES Tylenol, which didn't do anything at all. I was afraid to ask for anything stronger because I didn't want my doc to think I was a junkie or something, not a rational thought at all because I had never taken a RX pain med in my life before (except for wisdom teeth removal years ago). But I feared this stigma associated with vicodin or lortabs, meds like that. I was to the point where I thought "what the h**, I'll ask him, the worst he can do is say no". But he didn't, when I mentioned something stronger than Tylenol for my abdominal pain he was actually very sympathetic and said "sure, I'll write you a RX for vicodon". I was very surprised because I expected him to say no. Anyway, now I take one of those "magical pills" whenever the stomach pain is to much for me to handle, and I feel so much better now. I too work full time and I had been missing more and more work because I would feel absolutely wretched by early afternoon. But the vicodin I take for the pain really has helped me make it through the day.
I recommend, as the others do, that you ask your PCP about pain meds or see a pain management specialist. You, like everyone else here, has a serious, life-altering disease that makes each day a battle. You deserve to take whatever meds bring you relief and make it easier to live every day.
Take care and I hope you find a doc to get you the pain meds you need.
Marci C.
38 years old, dx with Crohn's disease March 2007, currently on Humira, Entocort and hydrocodone (for pain)

Regular Member

Date Joined Jul 2007
Total Posts : 188
   Posted 10/6/2007 6:30 PM (GMT -7)   
Do any of you that live in Georgia know of a sympathetic Good doctor?

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 10/6/2007 6:34 PM (GMT -7)   
My GI gladly prescribed me Lortabs, and they worked great. He's always been sympathetic about my pain. I just had a bowel resection 3 weeks ago and the surgeons who opened me up were the ones who didn't want to give me pain meds. I was given 10 percosets 1 week after surgery and that was it. It wasn't enough. I called my GI and he was willing to give me a script for more meds. I guess it just depends on the doctor. I used to be worried about doc's thinking I was a junkie looking for a fix, but now I'm not afraid to tell them that I am looking for a fix, a fix for the pain so I can function during the day and (mainly) sleep at night. So far that attitude has seemed to work!
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 33f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, Vicodin for pain, trying 9 mg Entocort again

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 10/6/2007 8:58 PM (GMT -7)   
eyes  MY first GI scripted all of my pain meds,then I was sent to see another GI because my doctor did not do remicade at the time and any way we (ex-husband and I)barley sat down and the first thing that GI said I don't script pain meds because people with Crohns do not hurt.Yea right.So needles say I did not see that GI again.When I moved back to my home town and another state I had to get a new GI and he did help me out the best he could and hwe told me up front he had no problem with giving me hydrocodone for pain buit would not script any thing stonger.SO I asked my PCP to reffer me to a pain doctor and I have been going there for over two years.So you may want to ask for a referrel to a pain doctor.

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 10/6/2007 10:16 PM (GMT -7)   
I've received prescriptions from both my GI and GP over the years and by far prefer dealing with my GP. My GI has no problem prescribing me something, but he never gives me one with refills whereas my GP usually writes one with refills. But both keep the number of pills on the low side. I would consider a pain clinic if one were in my area.

My GI's nurse told me that my GI is the only one at their office that prescribes narcotics. I can't understand why they would deny their patients pain relief. But I know doctors are under pressure due to the media (not to mention law enforcement) attention narcotics receive from abuse and illegal use, and that makes it harder for patients with legitimate needs. Between getting my pain meds filled and having to buy Sudafed fairly regularly for my allergy-ridden daughter, I'm starting to get paranoid about going to the pharmacy, and I'm not doing anything illegal!

As for those GIs that think we don't have pain, well walk a day in our footsteps!

We found out recently that Ultram (tramadol) was reclassified in our state as a schedule IV narcotic, though I don't think it's changed under the federal law.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 10/6/2007 11:12 PM (GMT -7)   
Boy I can understand. None of my doctors like to hand out pain medication. When my primary doctor does he wants to give me 600mg Motrin! We've talked many times about how I'm not supposed to take NSAIDS. But he just disagrees! I don't even bother asking him for pain meds because of that anymore.
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Forum Moderator

Date Joined Feb 2003
Total Posts : 15307
   Posted 10/7/2007 12:26 AM (GMT -7)   
My PCP prescribed my pain meds until I got ref to pain mgt. M gi offered me Lortabs once, I cannot tolerate them so declined and explained why.

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 10/9/2007 12:02 AM (GMT -7)   
I had a common experience, I guess. After explaining my horrid back/buttock/pelvis/abdominal pain to my GI, that it kept me up at night and that it was interfering with my work and that it had been going on for months, she looked at me sympathetically and told me I was "stuck with Tylenol". She said that things like Vicodin wreak havoc on Crohn's b/c of their constipating effect, causing all that stuff to just stick around and irritate the gi tract. I couldn't help but ponder why a slow-down on digestion wouldn't be a benefit for those who had diarrhea.

I went another month and ended up at my GP just to kind of let him know where I was at. I was so low...he asked a question of how I was doing in such a way that I started crying so hard...something about how I was holding up or something. I didn't do it for effect, but he gave me a refillable script for Vicodin, 30 Valiums, and a Zoloft prescription. Thankfully my pain has lessened and since I'm now on LDN I no longer take the Vicodin and i have only taken a few Valium but do think the Zoloft may be helping.

Anyway, my long-winded point is that there are sympathetic doctors out there. I felt so cared for and understood, and oh so grateful for the relief.
36 year old mother of a fabulous toddler named Mara. Symptoms began after Mara's birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.


Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere else in my colon (was too out of it to hear where, exactly). Pill cam, SBFT, CT Scan all were normal.


On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal since the SCD/Supplements/Naltrexone but the fatigue still occurs and I in no way think I do not have more symptoms in my future.

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 6:18 AM (GMT -7)
There are a total of 2,904,723 posts in 318,786 threads.
View Active Threads

Who's Online
This forum has 158168 registered members. Please welcome our newest member, carlystar13.
281 Guest(s), 11 Registered Member(s) are currently online.  Details
Lola2017, Melissa D., LymeSick 🌟, lagreenlee, Loutucky, Paxton, JeffM, Lynnwood, gabybee, PA_grandma, yucelersoz