Crying all the time today.

It is difficult to keep things in perspective with this DD. It took me 35 years to learn that I am not a victim of this disease and it does not define who I am. Sure, some days are more difficult than others and it is OK to cry and hae a crappy day. I have learned over the years to face just one day at a time. I try not to worry about tomorrow, how I will feel, or what I need to do. I do daily plan, but do not beat myself up if I don't get it done. Fatigue is a part of this disease and most everyone on the site will tell you it is there everyday. I know I have learned to accept it and do what I can and more importantly what I most do in the day. It is all about baby steps and one day at a time. Good luck and hope you find relief soon.

What meds are you on? Last 2 weeks I felt like this when I cut down on entocort. TooK pred again yest for the first time since July, and I feel like a new person today. Where in Fl are you going and for how long? I live in Sarasota. Hope you feel better fast.

Vicky,

You know I've been going through the same thing since my surgery. It's tough to snap out of it sometimes. I think I'm doing a little better, but it's because my father-in-law is getting pretty bad (stage 4 melanoma) and he asks for me, so I have to snap out of it. I've been spending days with him, trying to keep everything up beat, and while I'm grieving for him, it's giving me a purpose.

Don't beat yourself up for feeling bad, it's normal for this disease periodically. Hopefully you can have a good time next week on your vacation, maybe it's just what you need, even if you have to force yourself to go.

And maybe you should try and have some blood tests done just to rule out underlying infection or nutrient deficiencies.

Hi Vicky:

Can I come at this from a different perspective? I'm going to ask what is wrong with feeling the way you are feeling today? Can you find a way to honour your sorrow instead of fighting it? Can you embrace your despair instead of fearing it? Can you acknowledge your anger instead of denying it?

Through my experiences I have discovered that when I allow myself the freedom to really feel what I'm feeling -- without fear or judgement -- instead of getting stuck in an emotional black hole -- I move through it and in no time the mood lifts and can again view life with my usual optimism. For a long time, I functioned at a very high level always pushing aside the dark feelings. For the most part it worked, I guess, but the price was that I often felt I was literally wrestling with myself to impose control. So much energy wasted.

I know it may not be popular to suggest embracing the painful emotions, but if they are an authentic response to your circumstances -- and you really have been going through a difficult time lately -- isn't it perhaps possible that honouring and acknowledging them is actually a sign of strength, not weakness?

Just for what it's worth ... and know that this comes with hugs from the heart.

I don't know either of you well but, Vicky, I feel your melancholy. And Belleenstein, I felt myself saying "yes" to the heartfelt response you gave and I (and probably many others) think I needed to read it, too. Vicky, I sincerely hope what you're experiencing now is temporary and due to P. withdrawals, and that you have a great time in Florida. Here's hoping you do not have to grapple with this dd too much while you're there. - Jamie

I'm not on entocort, just the dreaded prednisone, which I'm tapering, nothing drastic, but I've heard other people complain
of entocort also.
Jamie, thanks for your post, it sounds like you feeling a little blue too. Maybe if we take Balleenstein's advice, and embrace it,
perhaps we'll both feel more like ourselves.
I see you're the Mom of a toddler. My goodness I don't know how you Mom's with CD cope. I watch my 2 year old grandson
2 days a week, and that knocks the stuffing out of me. Having said that, he also gives me reason to keep going!!

Best wishes