I feel for you girl...I keep most of my CD to myself because 1) I am a very private person, 2) nobody knows what the heck CD is so they can't comprehend, 3) I don't like to burden people. This invisible disability that we all have in common is really hard for "outsiders" to understand because they can't see inside our bodies to know how much pain we're in. When I try to explain CD to someone they get this look on their face like "huh, well that doesn't sound so bad, take some Pepto, you'll be allright." But having CD is not allright and it's very, very different from IBS or a nervous stomach. No one who doesn't have this disease or care about
someone with this disease can understand how it affects every aspect of our lives. My quality of life has suffered so very much with CD, I pretty much work and come home, that's about
it. I have come to terms with that but it upsets me still because I'm a single, relatively attractive (if I do say so myself ;) 38 year old woman yet I am so self-conscious, sick and tired from CD that I don't have the energy to go out or date or do much of anything.
Sometimes it gets me down too Dory...it's hard to live this way. You are very, very lucky that you have an understanding husband though, take comfort in having him there to help you thru your tougher times.
I hope that you feel better soon Dory, if you need to talk I am a very good listener ;) Take care!
38 years old, dx with Crohn's disease March 2007, currently on Humira, Entocort and hydrocodone (for pain)