its been a while

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Regular Member

Date Joined May 2005
Total Posts : 120
   Posted 10/4/2007 8:55 PM (GMT -7)   
I haven't posted anything in quite a while.  I haven't even been on here in a while.  I don't recognize most of the names anymore. Things just keep going from bad to worse for me, and I find I isolate myself.  Which I have done for a very long time now.  My husband is the only one I talk to about my Crohns.  I feel really bad for him, more than I do for myself, I know its hard for him, knowing he can't do anything, he's there for me, and that's what I need the most. I think he finally gets that.
Well, just wanted to say hello. I can't even begin to tell you how much having this site helps me.
Gonna go now, I'll just blab on forever.
Thanks for being here,

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/5/2007 7:16 PM (GMT -7)   
Welcome back Dory. Yeah, we do have alot of newbies, but some of us old folks are still here. Please don't isolate yourself. Come here and vent, cry or whatever you need to do. We are here for you. God Bless!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2007 7:10 AM (GMT -7)   
Ditto to nanners.... please come let us know what is going on. We understand!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Regular Member

Date Joined Sep 2007
Total Posts : 330
   Posted 10/6/2007 7:18 AM (GMT -7)   
Hi Dory,

My instinct has always been to isolate myself in times of stress too. But, it feels so good to "come out" afterwards. I think to myself: "these people were here for me all along."

I'm so glad you decided to re-connect!
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone (tapering), Cipro, Prilosec, probiotics, calcium and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/6/2007 4:49 PM (GMT -7)   
Hi Dory I haven't been here long but I find I now recognize the names now , amazing because I thought the pred. was frying my memory. I don't have a husband to talk to so the lucky man who's not having to listen here at my house, but there are many men who like to be needed.You mentioned things are going from bad to worse. Are there any questions we can help you with? I find alot of mine have been answered by others post. I do like the reaching out to others it makes me feel not alone. Sometimes it's good to just be a part of so many people's lives. lol gail

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 10/7/2007 7:38 AM (GMT -7)   
I feel for you girl...I keep most of my CD to myself because 1) I am a very private person, 2) nobody knows what the heck CD is so they can't comprehend, 3) I don't like to burden people. This invisible disability that we all have in common is really hard for "outsiders" to understand because they can't see inside our bodies to know how much pain we're in. When I try to explain CD to someone they get this look on their face like "huh, well that doesn't sound so bad, take some Pepto, you'll be allright." But having CD is not allright and it's very, very different from IBS or a nervous stomach. No one who doesn't have this disease or care about someone with this disease can understand how it affects every aspect of our lives. My quality of life has suffered so very much with CD, I pretty much work and come home, that's about it. I have come to terms with that but it upsets me still because I'm a single, relatively attractive (if I do say so myself ;) 38 year old woman yet I am so self-conscious, sick and tired from CD that I don't have the energy to go out or date or do much of anything.
Sometimes it gets me down too's hard to live this way. You are very, very lucky that you have an understanding husband though, take comfort in having him there to help you thru your tougher times.
I hope that you feel better soon Dory, if you need to talk I am a very good listener ;) Take care!
Marci C.
38 years old, dx with Crohn's disease March 2007, currently on Humira, Entocort and hydrocodone (for pain)

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