It does sound like Crohn's -- ulcers in the terminal ileum plus enlarged lymph nodes seen on CT scan. That matches exactly what was first found in me (I now also have some mild inflammation in my colon). I went for about
4 years with on/off abdominal pain but no diarrhea, then had diarrhea for a while but no pain! Now I don't have either, just a lot of fatigue and no appetite! So the symptoms can be different for every person, and they can change over time for you too.
Since yours in confined to the terminal ileum, and you're not in too bad of shape, consider skipping prednisone (the systemic steroid with lots of possible side effects), and instead try Entocort, a relatively new steroid that works on the terminal ileum without a lot of the overall side effects of prednisone. Lots of people on here have taken Entocort, including me. Steroids like prednisone should be used only when you're in a bad flare (really bad diarrhea or vomiting or weight loss or things like that).
Also, along with the Entocort (which is typically used for a few months), you should consider starting a "maintenance" medication for long-term use. Many people either start with Asacol or Pentasa (mesalamine medications), or step up to immunosuppressants like 6-mp or azathioprine. You can discuss this with your doctor.
Post Edited (beave) : 10/5/2007 1:53:38 PM (GMT-6)