Hi, I was dx in 2004 with Crohns and after a low dose of pred over a series of 5 weeks, I went into a remisson that lasted for over 2 years. We had our 4 child - I am 35. She just turned 1 this week. I breastfed her up to this week. Over the last few weeks due to stress, my crohns w/constipation decided it wanted to flare. My Crohns is where the small bowel meets with the large. Well after lovely painful attacks, I had a CT Scan (which because of the narrowing - my god almost killed me) - the dr put me pred at 60 mg a day, but because of my baby being bfed and getting very sick (nothing to do the with pred)- the dose was lowered to 40 so I could wean and keep her out of the hospital. Well, the pain became worst and the blockage narrowed - due to scar tissue they think and I had another attack (you know the throwing up everything) - the dr put me on only liquids and now - back to 60 mg - (baby is weaned and healthy now). I had a small bowel follow thru - it took 7 1/2 hours for it to get to large colon. The dr has advised surgery as soon as possible. Because he feels this will give me a better quality of life instead of going into the hospital hoping that IV steriods help. He believes that this will keep recurring every few months and with me being active mom who wants more children, he feels that meds are not just the answer that Surgery would be the best situation. I am currently on liquids only (god I hate ensure) and no bowel movement (have small gas) in 12 days - I have pain meds for the cramps when they come and still taking 60 mgs of pred. I lost 20 pounds over the last few months. I am very thin right now. I truly miss my rear end. It looks like Tuesday is when the surgery is.
Has anyone had this surgery? What can I expect? I am worried.
Thank you so much!