Introduction and question

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Regular Member

Date Joined Oct 2007
Total Posts : 76
   Posted 10/8/2007 7:55 PM (GMT -7)   
Hello all!  My name is Shannon, and I just stumbled upon this site while doing a search about Remicade.  The Crohn's is my main issue....between being sick from that and what the medications do to me, it's caused so many problems.  I take Lialda, 10mg of Prednisone, 9mg daily of Entocort, 5 vials of Remicade, 80mg of Nexium daily, 40mg of Bentyl a day, HCTZ, Lisinopril, Soma three times a day, Frova for migraines, Nulev for pain, Lomotil for diarrhea, a multivitamin, iron, B-Complex, and Vicodin for pain (which doesn't do a whole lot).  I was diagnosed with asthma at 14, started having pelvic pain at 17, began having the first issues with Crohn's after my second child was born.  After my third, there was no doubt that I had Crohn's, and was finally diagnosed.  I tried lots of different medications, some that did nothing, others, like 6MP, I had allergic reactions too.  I started Remicade about 4 years ago, but went off while I was pregnant with my fourth child.  I went back 2 weeks after his birth and had serum sickness after the infusion, because of the antibodies my body had made.  I ended up tearing my rotator cuff and labrum during this time, probably which struggling with a newborn and 3 other kids with joints that didn't want to move.  I had my gallbladder out a few months later, and had my tubes tied at the same time.  6 months later, I had a pubo-vaginal sling put in to hold up my tired, leaking bladder.  5 weeks ago, I had a supracervical hystectomy, and found out that my problems with my period were due to endometriosis.  also have diverticulitis, acid reflux, and fibromyalgia.
This discovery about the endometriosis made me wonder if there was any correlation between shutting down your immune system and having endometriosis develop.  According to one thing I read, less than 2% of Remicade recipients develop issues like that.  I'm still not feeling well after having the surgery, and in fact, I see my GI tomorrow, but I wonderif now my Crohn's will improve with the endometriosis gone?  Has anyone else been on Remicade and developed endometriosis?  I know I have to discuss this with the GI tomorrow since it seems that every little thing that happens with Remicade has to be reported (being pregnant after being on Remicade, resuming Remicade after a pregnancy, any adverse reactions during infusions, reactions in the days after the infusion), but I wonder how often it actually happens, or perhaps I'm just a freak? LOL
Thank you all for reading! tongue
Crohn's Disease
Chronic pelvic pain/endometriosis
Torn rotator cuff/labrum
Bladder sling, cholystectomy, tubal ligation, failed ablation

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 10/8/2007 8:15 PM (GMT -7)   
Hello Shannon, I can't answer your question about endometriosis and remicade, as I had severe shock reaction to the drug,
but I wanted to say hi, and welcome. You sound as though you've gone through a lot, but coming here might help with a few
issues. I'm sure someone will come along who can maybe answer your question.

Keep posting.

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 10/8/2007 8:16 PM (GMT -7)   
Hello and welcome to the site. Lots of good people and info here. I cant help with your question but I am sure someone will come along with an answer. Just one more hint for you. The site moves pretty fast here so if you dont get and answer right away your post may have slipped to the second or third page. Feel free to bump it back to page one. Just answer your own post with the word, bump. Sounds like you have been through a lot so, good luck and hope you feel better soon...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 10/8/2007 10:53 PM (GMT -7)   
I had endometriosis way before I was diagnosed with Crohn's. I had a hysterectomy, inpart due to endometriosis, 16 years before I ever had Remicade. I am highly doubting that Remicade was the reason endo was found at the time of your hysterectomy but I have also learned never to say never. LOL!

BTW, welcome to Healing Well!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 10/8/2007 11:02 PM (GMT -7)   
Welcome to Healing Well. You sound like you have been through sooo much! God Bless your courage. Know that you are part of a "family" of sorts here. We all support each other , pray for each other. We complain, cry, vent and often we make each other laugh!. I'm so glad you have found us. Come to us often.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

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