News about the appendix

What was removed and when
tonsils or appendix only-before dx CD - 21.1%
tonsils or appendix only-after dx CD - 28.9%
both-before dx CD - 5.3%
both-after dx CD - 0.0%
both-one before/one after dx CD - 13.2%
none removed - 31.6%

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Veteran Member

Date Joined Jan 2006
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   Posted 10/9/2007 9:44 AM (GMT -7)   
OK all over several radio and Tv broadcasts is the recent news that maybe the appendix provide "good germs" and really does help us.  They are also looking further in tonsils for the same reason. I have always felt that you shouldn't cut out something unless it was a direct threat, but I lost my tonsils in 4th grade (and didn't get another cold for years after it) and my appy went when my resection (just because).
For my curiosity, I am wondering what you guys have had out and when.  Not a scientific study, just my curiosity

ps---I know that date of diagnosis isn't a fair timeline since some had CD before diagnosis, but I only had 6 options in the poll!

Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Post Edited (HabsHockeyFan) : 10/9/2007 10:48:25 AM (GMT-6)

Mormor Vicky
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Date Joined Mar 2007
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   Posted 10/9/2007 9:54 AM (GMT -7)   
hockeyfan, I'm like you. Appy out at the time of resection and that is when I was dx'd.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Regular Member

Date Joined Jan 2007
Total Posts : 67
   Posted 10/9/2007 9:57 AM (GMT -7)   
Same for me hockeyfan! They took my appendix when they did a resection, just because!

I saw that article this week too, and it made me wonder if they will stop taking them out as routine when they do a resection?

Veteran Member

Date Joined Feb 2005
Total Posts : 1146
   Posted 10/9/2007 10:33 AM (GMT -7)   
I still have both.  Of course, I have never had abdominal surgery at all, or they would have taken my appendix, I'm sure.
Co-Moderator Crohn's Disease Forum
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Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/9/2007 10:34 AM (GMT -7)   
I havn't had anything removed at all,'s so frustrating...maybe my stupid appendix isn't releasing enough good bacteria...I really feel like a lemon, my body has really let me down.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 10/9/2007 11:19 AM (GMT -7)   
I posted this a couple days ago. if anyone wants to read more about this. yp

Regular Member

Date Joined Aug 2007
Total Posts : 79
   Posted 10/9/2007 3:35 PM (GMT -7)   
I had my tonsils out at 20 when I came down with cronic fatigue syndrome. (Maybe it was crohns then I just don't know) and my appendix out 3 years before CD diagnosis. I wonder if lacking the appendix made my crohns come out.

Regular Member

Date Joined Aug 2006
Total Posts : 177
   Posted 10/9/2007 3:51 PM (GMT -7)   
had my tonsils out when i was 3 years old. they took my appendix after my surgery because they moved my colon up 3 feet. another words my appendix would've been in the wrong spot if not removed.

38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 10/9/2007 4:05 PM (GMT -7)   
They removed my appendix when they went in for my emergency resection. Had they not done it then it would have happened one week later when 1/3rd of my colon did not wake up after my resection causing me a temp ostimy and removal of my ascending and colon. After my reversal they also took half of my transverse colon
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Apr 2007
Total Posts : 217
   Posted 10/9/2007 7:53 PM (GMT -7)   
hi hockeyfan I had my tonsil out at age 7. I still have my appy but I never had a resection either.
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.

Regular Member

Date Joined Mar 2007
Total Posts : 257
   Posted 10/10/2007 5:46 AM (GMT -7)   
I had a resection but they didn't take my appendix when they did the resection. I didn't realize that was a common thing. Why do they do that? I had a wonderful surgeon that studied at the Mayo Clinic so maybe he knew something by leaving it in.

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 10/11/2007 7:53 PM (GMT -7)   
still got all my bits :)
dx 17th August 2007,after 2 years of syptoms 20 yrs old 20mg predisone,100mg azamun,chewable iron

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 10/12/2007 6:04 AM (GMT -7)   
They took my appendix when i had my bowl resection at the same time. I still have my to tonsils.

Regular Member

Date Joined Dec 2003
Total Posts : 494
   Posted 10/12/2007 7:38 AM (GMT -7)   

i "losted" my tonsils this past year. (now THAT was some pain) so for me tonsils after d'x, but i still have my appy. my twin sister who has not been dx'ed with crohns has had her appy removed however.



Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
Probable MS
Im 26 years old, and am currently only taking remicade, protonix and evil prednisone for my CD. am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BD med. and i take some meds prn for my allergies, asthma, and migrianes.
"We are all worms but I do believe i am a Gloworm"
^always makes me smile^

Regular Member

Date Joined Jul 2007
Total Posts : 137
   Posted 10/12/2007 7:50 AM (GMT -7)   
Had my appy removed 6 years or so before dx, still have tonsils tho, with resection they did not take any extra parts thankfully, have enough problems
Dx CD 2003 but probably had it 10 years prior
Dx Primary Sclerossing Cholangitis 2006
GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05
Currently on 100mg 6mp and Remicade every 8 weeks, Ambien as needed, predsnisone

Veteran Member

Date Joined Jan 2005
Total Posts : 1823
   Posted 10/12/2007 8:47 AM (GMT -7)   
Strangely enough, my appendix was removed a couple of months before dx. BUT I was definitely in a flare at the time, so removal wasn't what prompted first flare. The pathology was a little vague on my appendix, it was classified as "old" -- whatever that means. The ovarian cyst attached to it was the main reason for removal.


Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 10/12/2007 8:40 PM (GMT -7)   
Still have the tonsils, appendix removed during resection. Another interesting related story the request of a friend, visited a 25 year old male in the hospital that had been dx'd about five years ago with CD. They ended up finding upon surgical pathology report, that the guy's appendix was calcified (so to speak). They deemed this to be the cause of all his medical problems and told him he did not have CD. He was having classic CD symptoms in my book. Anyway, ran into the kid at the bank the other's been about a year now since his surgery. Symptoms are in remission and he's doing fine. However, he's definely cautious to throw out his prior CD dx. Just thought I'd throw this in the mix on the appendix/CD topic.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 10/13/2007 8:42 AM (GMT -7)   
There's some older research I once found at PubMed wherein there was some fairly strong indication that removal of the appendix made one somewhat more susceptible to Crohn's BUT appeared to be somewhat protective for not developing UC.

I had a elective tubal ligation, at the same time they did a bladder and uterine suspension (had no idea I needed them) AND an appendectomy. I was blackmailed into the appendectomy and I've always resented it. I was told they would take the appendix when they did the ligation. I told them I did NOT want them to take the appendix. If it ain't broke, don't fix it. They refused to do the ligation unless they also took the appendix. It was a standoff for over a year. But then I had a pregnancy scare. Turned out to be a false alarm but that drove me to agree to the ligation - and appendix removal.

Two years later Crohn's symptoms began and 6 months later I was Dx'd w/Crohn's. D*amn surgeons! Two years after that I had a resection for 18" of the mid-ileum so I still have the TI and ICV. Altho now there is some mild inflammation in that area and some scarring.
A couple of years ago I developed a cataract. It finally progressed to the point it was causing enough problems to consider having it removed but I "could" have done all right for some time yet. Like I fool I [b]elected[/b] to have the surgery done. Its not like I went to some snuffy or that I didn't get a couple of opinions first. I made the mistake of having the surgery done at U of M's Kellogg Eye Center by their leading ophthalmic surgeon. They sheister gave me a "reading" lens inplant when I was specific that I wanted a "distance" lens inplant. THAT was HIS mistake that I am paying the consequences of. To add insult to injury, they mis-measured my eye so that its not even the correct "reading" lens inplant. (That's a risk that I WAS aware of).
I'll have to be dead and dying BEFORE I ever agree to another surgery!! I have an almost 7cm ovarian cyst they've wanted to cut out since we found it at 4 cms. Even Mayo Clinic has wanted to cut out that resection site at the mid-ileum for several years now, but their surgeon mentioned they "might" have to take the new area at the TI/ICV area as well. I adamantly refused to agree to the TI/ICV area, they said they couldn't do the mid-ileum surgery if their hands were tied regarding the TI/ICV area. [b]D*amn surgeons![/b] So I refused the surgery. And I do NOT regret refusing either surgery. Like I said, when I'm dead and dying - maybe.

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 10/13/2007 10:00:05 AM (GMT-6)

Veteran Member

Date Joined Nov 2003
Total Posts : 7314
   Posted 10/13/2007 9:17 AM (GMT -7)   
Too bad there weren't more options to add gall bladder into the poll too!

I had my GB removed as a result of what we now think was a Crohn's flare. The next flare had the OR booked and a CT just before showed inflammed TI and normal appy, so surgery was cancelled. If it weren't for the ER doing that CT, my appy would be gone.

A few years later, the tonsils had to come out. I literally had to beg the ENT to take them, but after surgery, he admitted how surprised he was that they were so infected! Imagine what medicine could be like if the Docs actually listened to the patients!

Right now, I am undiagnosed again and there may be another reason for most of my problems, but it's going to be a while before we have any real answers.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
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Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 10/13/2007 9:23 AM (GMT -7)   
I still have my tonsils and had my appendix removed during my first surgery for CD because I had an abscess draining into it and it was about to burst. I had CD and all it's symptoms way before they removed my appendix.

CrohnieToo: why on earth did they have to remove your appendix to do a tubal ligation? And what is the TI/ICV area? They must have a reason for wanting to take it out, they must suspect disease? I can understand your reluctance to have more surgeries.  I never had anything go wrong with a surgery until this last one, and it changed my perspective entirely (aside from wanting to hunt down and torture my surgeon, lol). 
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, back on 6MP for maintenance, hoping for a long remission from this last surgery. 

Post Edited (JudyK89) : 10/13/2007 10:33:24 AM (GMT-6)

Veteran Member

Date Joined Nov 2003
Total Posts : 7314
   Posted 10/13/2007 12:17 PM (GMT -7)   
Judy, the TI.ICV is the terminal ileum/Ileo cecal valve area.This is where the small intestine meets the large.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 10/13/2007 5:01 PM (GMT -7)   
At the time of my tubal ligation, if they went into the abdomen for any reason they routinely removed the appendix. There are still quite a few behind the times doctors who insist on doing so maintaining it is all too likely a source of future infection and possible emergency surgery.

Years ago almost every kid ended up having their tonsils and adenoids removed because they, at least the tonsils, "weren't needed" and were a likely source of infection and eventual need for surgery and their removal in kids was much easier and less dangerous than for adults.

I escaped that logic, fortunately.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 10/13/2007 5:21 PM (GMT -7)   
If you have stricturing crohn's in the TI and come to resection, it's pretty hard to avoid taking the appendix too.

30+ years living with Crohn's.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 10/13/2007 7:03 PM (GMT -7)   
Agreed! Once that area has to go there is little choice, the appendix has to go too.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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