So I was hospitalized for the majority of Sept. And yes when I got out my GI had me on Remicade, 80mg of Pred, and several other things. Well I tapered the Pred without his permission. Yes, I shouldnt have and no I know I am no doctor. But I know what will probably put me in remission which is imuran, remicade, and asacol together.
Now because he had me on such a high dose of Pred I started having all kinds of issue, including seizure/stroke level blood pressure. I had to be put on 2 different kinds of BP meds, and ativan which did nothing for my irregular heartbeats and tachycardia along with PACS I was throwing. So then I was switched to Clonapin per my PCP.
Now last week I asked for something for pain in the interim of the 8 weeks it takes for Imuran to take affect. He says, I just dont get how you can still be in pain. Your last CT showed inflammation going down, you should be stabalizing or whatever.
So I fessed up and told him maybe it was becuz I tapered my Pred...but that the Pred was causing me to be crazy, suicidal feeling and all kinds of crap. NOW IM considered a non-compliant patient and he said he would write nothing for pain for me. I was like whatever. Then he booked me an appt with a colo-rectal surgeon just in case. And I promised him I would stay on at least 20mg of Pred and started taking 75mg of Imuran as well as being switched from Pentasa to Asacol.
Fast forward to Satnight, I was in excruciating ripping my guts out pain, couldnt go to the bathroom, nausated as all get out...I was like crap I have an obstruction, then it started....I started going to the bathroom and havent stopped since...every 20mins..cramps, pain, diarrhea (tmi) and now my joints are hurting again..Im in a flare again I guess. Is it my fault? maybe but maybe not...I am in the middle of a terrible financial situation right now and maybe getting a seperation from my husband (STRESS) SO I called him today/nurse actually and just spilled it...told her Im crapping my brains out..have fissures burning my ass and hemerroids the size of pro-golf balls. I want something for pain PLZZZZZZZZZZZZZZZZZZZZZ!!
His answer to everything is to admit me...well I dont want to go back into the hospital....and check this crap out...last time I was in the hospital..it was messed up. 2 Docs werent communicating, one was dosing me constantly with laxatives to get this contrast out of me to see an xray of my spine, the other was giving me pain meds to help with the cramping which was caused by the dosing. and I ended up with a Paralytic Bowel...npo'd for days and in pain. Then some stupid nurse said my Demerol was D/C for over 48 hrs so I sat in pain. Would you want to return?
I hate him...I tried to switch to another guy who was highly recommended but when he got my chart, he called me and spoke to me for an hour of how he wouldnt have done anything different than what my doc had, and he said I need to stay with my own doc!!!!!!!!!!
What would u do? Im dreading this call back...Im sure it will my sarcastic doc saying Im not giving you crap for pain cuz you are non-compliant and how do I know you are taking the Pred and blah blah blah...I feel helpless. Im not some rehab patient! Im a person in pain! What does he think Im gonna go rob a pharmacy if he prescribes me something for pain?