Has anyone's GI told them to get pregnant?

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New Member

Date Joined Oct 2007
Total Posts : 3
   Posted 10/15/2007 8:57 AM (GMT -7)   
Hey, I'm new, I'll jump right in.
Backstory: I'm 23, married 2 years (young, I know!). I was dx'ed in November of 2006 after being misdiagnosed with Celiac in Feb of '06. (I'm one of the lucky ( eyes )  IBDers who is fat as opposed to skinny, confusing the entire medical community). I started getting sick in fall 2002 after a nasty case of mono. I'm  lucky, I haven't had any surgeries or obstructions, and I guess I'm fairly mild compared to tons of other people out there.
I started out on Pentasa, which didn't work, then made the progression to entecort then Remicade in February. I more or less refuse to take Prednisone unless it's life and death because the side effects are so bad. I started on a 5 mg/kg dose every 8 weeks on Remicade then got upped to 10mg/kg every 6 weeks, but that gave me the lovely lupus-like issues so I'm scooting back to 5 mg/kg every 6 weeks and we'll see if it gets rid of the joint pain. Remicade works about 60% of the time, and I'm on a cocktail of symptom-stoppers like bentyl, phenergan, lomotil, and I don't even know what else anymore PRN. As mild as my disease is, it refuses to go into full remission. 
I also apparently have sacroile...sacroiliit...you know that thing where the joint where your spine and your hip is inflamed because the inflammation spread from your gut to your back? That thing.
At my last appointment my GI suggested that I try to get pregnant as soon as not disastrous for us, which is pretty much now through spring. Since I appear to me walking a fine line of tolerance for Remicade, and he doesn't want me on any of the 6MP or methotrexate until after pregnancy, or at least for as long as possible. Basically get pregnant before disaster strikes and either I need surgery or the Remicade stops working entirely, since he's had a lot of success with patients on Remicade while pregnant.
Oh, and if I decided to stop the remicade, my GI and OBGYN both agree that I'd have to be on steroids pretty much throughout pregnancy, which I'd rather avoid.
DH and I are on the fence about whether to try now or to wait for another 2 years as we had originally planned. I'm terrified of either option, and I don't believe in IVF or other assisted reproduction personally (it's cool for anyone else, I can't reconcile it for my own self, though).
Has anyone else been told anything similar by their doctors? TIA!
And hi!

Regular Member

Date Joined Jul 2007
Total Posts : 137
   Posted 10/15/2007 9:27 AM (GMT -7)   
There are lots of people who have had sucessful pregnancies during the course of this disease who have had surguries and many other complications. You will probably need a high risk OB to keep a close eye on things but there shouldn't be any reason you can't have a baby when you want. Don't rush into something you are not comfortable with or ready for. Babies area huge life change. I know there are serveral people on this site who have had several sucessful pregnancies while on medications, remicade etc. They could give you a better idea of what to expect.
Dx CD 2003 but probably had it 10 years prior
Dx Primary Sclerossing Cholangitis 2006
GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05
Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/15/2007 9:37 AM (GMT -7)   
I think the advice Mojowo4 gave you is right on. No need to rush things. I personally would prefer to be healthy as possible beofre going into the pregnancy. I was diagnosed at 18 and had 3 daughters by the time I was 24. So if your not ready yet, go ahead and wait. I think you will be fine. My Crohns is considered mild also. Good Luck and God Bless.

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/15/2007 10:44 AM (GMT -7)   
Preganancy and crohns can either keep the CD the same as it is before pregnancy, put you into remission or cause flares....

My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Member

Date Joined Oct 2007
Total Posts : 3
   Posted 10/15/2007 10:51 AM (GMT -7)   
I think he's anxious for me to start a family while I'm pretty stable and young enough to bounce back quickly.
We're ready but not ready, you know? Weighing all the options is stressful.

Veteran Member

Date Joined Jun 2004
Total Posts : 1372
   Posted 10/15/2007 3:40 PM (GMT -7)   
If you are not ready DO NOT have children. Don't ever let someone else tell you when or how many children to have, that is totally a personal choice. I had family berate me to have more children and I resented them for it. I only had one and was sick as a dog for 9 months and was not going through it again. I have a friend whose doctor told her to have children, she didn't and switched doctors.

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