Remicade users...

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Regular Member

Date Joined Sep 2006
Total Posts : 181
   Posted 10/17/2007 8:05 PM (GMT -7)   
Anyone else have a dr. that believes in shortening the length of time between remicade treatments?  I have been on Remicade about 11 months, and not making it 8 weeks apart without the D and stomach cramps firing up.  So the Dr. is moving my treatments to every 7 weeks and willing to go as close as 5 weeks apart if needed.  Wanting to know if anyone's dr's have voiced thoughts on this approach.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 10/17/2007 8:33 PM (GMT -7)   
Yup, I started at every eight weeks, then my GI increased the doasge from 5 mg/kg to 6 mg/kg every 8 weeks. Still was having problems, so I was moved to the new dosage every 6 weeks. Then I was still having problems so dosage increased again. Ended up at 7.5 mg/kg every 5.5-6 weeks.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 10/17/2007 8:51 PM (GMT -7)   
When I was on it, I went from 8 to 12 to 6 to 4, depending upon how I was doing.

Veteran Member

Date Joined Apr 2004
Total Posts : 2284
   Posted 10/17/2007 9:01 PM (GMT -7)   
Yep, got down to every 4 weeks at one point.
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Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 42 years.

Regular Member

Date Joined Dec 2004
Total Posts : 162
   Posted 10/18/2007 2:16 PM (GMT -7)   
Yes, I was doing every 6 weeks at a double dose but needed to do it more like every 4 . Now, I am able to go every 10 weeks + and actually hoping to get off it completely in January (cross your fingers). Do what ever is necessary to get you better!

Veteran Member

Date Joined Apr 2004
Total Posts : 1200
   Posted 10/18/2007 3:28 PM (GMT -7)   
yes when i was on remicade i was having it every 5 weeks.

Regular Member

Date Joined Aug 2006
Total Posts : 177
   Posted 10/18/2007 5:08 PM (GMT -7)   
after my 5th infusion i mentioned to the g.i. that after 6 weeks i was feeling lousy after 6 weeks. so he bumped me up to 6 weeks.
38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees

Forum Moderator

Date Joined Feb 2003
Total Posts : 15305
   Posted 10/19/2007 3:17 AM (GMT -7)   
Mine were every 4 weeks. Sometimes we did like a booster and would repeat it two weeks later and that always helped. Remicade does not stay in the system as long as they initially thought. It really needs to be tailored to your needs. My gi would have done it every 2 weeks had it been necessary...Susie

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