Now I am getting nervous

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Regular Member

Date Joined Aug 2005
Total Posts : 289
   Posted 10/20/2007 3:51 AM (GMT -7)   
I have my End/Colonospcopy appointment set up for Oct.25.  Small bowel follow through on Nov 30 and the pelvic CT isn't set up yet.  I have been having minor stomach pains, and diarrhea since.  I am scared to death to drink that prep as sore as my gut is right now.  Yesterday I went through this hunger/pain thing.  I thought I was hungry so I would eat but it would either get worse or no change.  I think there might be blood in my stools they look like a dark chocolate but I can't get much liquid out at a time so I am going 4 times for one time if you know what I mean.  Spent most of the day in the bathroom yesterday and it is already starting today.  Man I wish I didn't have to work.  Suffice it to say I am whooped today and have a 8 hour work day in front of me. 
I so don't want to do this rotorooter thing.  Most of my worries are they are going to get in there and say nothing is wrong.... I have been through that so much before with the RA... it took over 10 years to diagnose.  The most common dx was stress or mental illness.  It was the worst 10 or so years of trying to find out what the hell was wrong.... other dx they tried:  fibro, too heavy, psychogenic, and just plain being female.  darned doctors no wonder I cancel everything at the last minute now I am afraid of being listed as a hypochondriac even though I have very real physical symptoms and illness.  I know I need to get over that now... it has been discovered and am being treated but I still get really pissed because if they had started treatment 10 years ago instead of blowing me off I might not be where I am now.
Okay, done whining.
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/20/2007 4:13 AM (GMT -7)   
Hi Theresa I know it is frustrating at times but you know you aren't imagining these problems and it is important to get proper knowledge of what is going on. You"ll do ok with the prep probably maybe it will do you good to get a good cleaning out although I can remember times when it was exhausting. We shouldn't worry about what our Dr's think about stuff but I guess a person does at times .Keep in touch about what is going on and we are here for you. lol gail

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 10/20/2007 4:47 AM (GMT -7)   
Nobody knows your body the way that you do, especially not the Dr's, you know when it feels good and when it feels bad, and you know when something inside of you isn't right. Just because the Dr's aren't able to give you a proper diagnosis doesn't mean there's nothing wrong, just means they haven't found it yet. Dr's only know what you tell them so be very, very specific about your symptoms and the pain it's causing you. Also, do your own research and don't be afraid to say to the Dr, "could it be this?". They don't know everything, that's not possible. Let the Dr. know just how concerned you are, it's your body and your health you're dealing with. I know it's difficult cuz you don't want to be labeled as a hypochondriac or a cry baby, I worry about that all the time too. Just remember, you are the best judge about what's going on in your body, and you know that you are ill. Please hang in there and stay positive, don't worry about the upcoming tests, you'll get thru them just fine. My thoughts are with you. Please take care!
38 years old, dx with Crohn's disease March 2006, currently on Humira, Entocort and hydrocodone (for pain), and Effexor

Regular Member

Date Joined Sep 2007
Total Posts : 330
   Posted 10/20/2007 7:17 AM (GMT -7)   

You're not whining -- it's really hard to deal with all this. I've noticed on this forum that there are many who have had diagnostic tests with unclear results. Don't be worried about your testing. Just get it done, and then whatever the results are, use them as part of your conversations with the GI about what's going on. as in: "Doctor, I'm wondering how we might explain that I'm in the bathroom 20 times a day despite the fact that my testing was normal? What do you think the next step is?" or "What are the other possibilities to explain my symtpoms?"

Hang in there -- you'll do great.
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Cipro, Prilosec.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004, taking Synthroid) and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.

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