medications for crohns

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Regular Member

Date Joined Nov 2004
Total Posts : 89
   Posted 10/22/2007 5:21 AM (GMT -7)   
       Hello everyone, I just started taking azathioprine for about 2 weeks now. I have a terrible headache every day. I know it has got to be the medicine. However when i looked it up i don't see it as one of the side effects. The long term side effects seeme rather scary. I have used up about all of my options though. I have taken the humira also. I don't know if i like the long term of it either. My dr wanted me to try the azathioprine first. Does anyone know of any other medicines that work good without the possible tumer or cancer related scares?

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 10/22/2007 5:26 AM (GMT -7)   
Imuran and 6mp (basically the same drug) have been used for many years in Crohn's with good results for most patients. There have been a number of long term studies showing that the cancer risk is very minimal, mostly related to lymphoma, which can also be a result fo the runaway inflammatory condition associated with uncontrolled disease. The dosages used in Crohn's treatment are very low as well. Remember that it can take months for this medication to reach full potency. The most common side effect is leukopenia (suppressed white cell count) but that is seen in only 10% or so. Your doctor should have you on regular blood count monitoring to watch for that, and it is reversible by simply stopping the meds or lowering dose.

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 10/22/2007 9:00 AM (GMT -7)   
I have a friend who's daughter took something that starts with a "3" (?) She got horrible ulcers from it and ended up in the hospital
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Forum Moderator

Date Joined Feb 2003
Total Posts : 15534
   Posted 10/22/2007 11:37 AM (GMT -7)   
Jersey when I first started Imuran I also got a headache. After a few weeks they went away. Also, take your medication at bedtime, helps with any possible nausea. Try to give it a little more time. Susie

Regular Member

Date Joined Nov 2004
Total Posts : 89
   Posted 10/22/2007 6:13 PM (GMT -7)   
Thank you all for your input, I will give it a little more time with the headaches. As for the ulcers i have 3 already, but they are getting better. I seem to have a lot more hot flashes too.

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 10/22/2007 9:52 PM (GMT -7)   
Have you followed some of the many discussions we've had on low-dose naltrexone? It is experimental, but seems to be mostly free of side-effects.

A discussion from just a few days ago:

Good introduction to this topic:
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 10/22/2007 10:51:18 PM (GMT-6)

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