Anyone in Ontario taking Remicade through the Trillium drug plan??

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New Member

Date Joined Oct 2007
Total Posts : 2
   Posted 10/24/2007 7:50 PM (GMT -7)   
Hi everyone, I just started Remicade after a year and a half of prednisone (no help, made me psychotic), Imuran and Budesonide (horrible side effects from Imuran, had to quit after 2 weeks, bizzarre reactions to Budesonide as well), Pentasa and Salofalk (waste of time) finally surgery in Jan 07 and now down to Remicade... anyway, my disability / health plan soon runs out and I was curious if anyone on this board lives in Ontario and has been on Remicade through the Trillium drug plan; I have heard that the plan only covers 60 infusions?? what are you supposed to do after that? I have spent the last month looking for any kind of private insurance that I could buy and of course I am not insurable... anyone who is in remission and managed to get approved for life / disability insurance with pre-existing Crohn's, please get in touch and let me know when and how, and how much confused

chris ( 38 years old, Toronto, diagnosed in April 06)

Regular Member

Date Joined Feb 2016
Total Posts : 140
   Posted 5/27/2016 5:36 AM (GMT -7)   
Good question
Proctitis? (2012 scope w missing/lost sigmoid biopsy)=> Pancolitis & Backwash Ileitis (2016)
Pentasa Oral and Supps, Imuran, antispasmodics, trying 60 days of VSL#3 Probiotics, S. Boulardii
location: Toronto, ON Canada

Canada Mark
Veteran Member

Date Joined Jan 2013
Total Posts : 3479
   Posted 5/29/2016 6:14 PM (GMT -7)   
60 infusions is a LOT.... that's probably 10 years... Chances are substantially higher you'll build up antibodies to the drug long before.

I made it two years - which, including the initial loading doses and a change to every six weeks eventually in the second year was still only about 16 - 18 infusions in total.

I used the trillium program. Was great and I didn't run into any issues. I have been told you can get coverage under some chamber of commerce workplace plans even though you have a pre-existing condition, but it may be tricky.

Anyway, I think you'll be just fine using trillium. The Remade nurse can help you set it all up.

Regular Member

Date Joined Apr 2016
Total Posts : 20
   Posted 6/1/2016 4:33 PM (GMT -7)   
Trillium kicks you off the plan if you don't use it at all in an 18 month timespan. They also split the year at the the start of August to louse you up unless you're self employed and can designate the taxation year starting August 01. Three percent of your net income becomes your deductible. I never applied for disability but I believe you can go back ten years on your income tax in Ontario.
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