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Crohn's newcomer
New Member

Date Joined Oct 2007
Total Posts : 9
   Posted 10/26/2007 7:40 AM (GMT -7)   
Does anybody know what chrohn's in the mouth looks like.I have some ulcers on my toungue.Thanks

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/26/2007 9:24 AM (GMT -7)   
Hi there is someone on here who has some mouth problems and one who has tongue problems .I am sure someone will be along to help you with that. I don't have any but do get tonsil problems. lol gail

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 10/26/2007 9:45 AM (GMT -7)   
i dont know for sure if mine were mouth ulcers from crohns, but during a bad flare a couple of months ago, I got what seemed like larger, but less severe/sensitive canker soars. Mostly on the upper inside of my lips (the part that rub against teeth).
They only lasted about 8 hours each--although they lasted 3 days but on different parts of my mouth

Hope that helps.

32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 10/26/2007 2:19 PM (GMT -7)   

Aphthous ulcers are the most common mouth lesion seen in Crohn's. Crohn's can cause granulomatous inflammation in the mouth but it is far less common than the aphthous ulcer. Aphthous ulcers are commonly called "canker sores."

Here is a link to a photo of a single, small aphthous ulcer: Aphthous ulcer picture  Please know that an aphthous ulcer can be larger or a person can have many of them together. I once had a bad outbreak of them on the side of my tongue. There were so many they all seemed to run together.

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 10/27/2007 1:21 AM (GMT -7)   
I've had mouth ulcers with flares. They were extremely painful. Are we talking about the same thing?
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Mar 2006
Total Posts : 366
   Posted 10/27/2007 10:41 AM (GMT -7)   
I get the mouth ulcers right before a bad flare. They hurt like heck.
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 10/27/2007 12:48 PM (GMT -7)   
I also get them when very stressed. A Dr treated mine with some medicine when I was in college and it helped a lot. I have not gotten them as bad since then but I do get them some. I use Listerine and it burns like crazy but it seems to heal it much faster and numbs the pain afterwards for a little while.


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, waiting on a EMG nerve test right now...

Regular Member

Date Joined Feb 2007
Total Posts : 33
   Posted 10/27/2007 3:45 PM (GMT -7)   
I get canker sores on my tongue from time to time.
They hurt, especially when you eat.
I use Kank-A Mouth Pain Liquid, which takes the pain away instantly.
Then it usually heals it in a day or two.
You can buy it over the counter just about anywhere.

58 yr old female
Dx with Crohn's-Colitis January 2007
Meds: Remicade, Aciphex

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