Anxiety has been a problem for me since shortly before I was diagnosed. I'd had hemmie surgery and wasn't recovering well. Or at all, really. The surgeon acted like my problems were all in my head- he went so far as to tell me that I had developed "little old lady syndrome" at my last appointment- and had me and my family convinced for a while, too. At that time I started with the agorphobia. My mom had come to town to take care of me after the surgery, and she had to force me to start driving again. I really freaked out when she went home.
Now that my disease is more stable, I'm able to live more normally. When things kick up I still want to hole up in my cave and not go anywhere. I just don't want to deal with anything or anyone. But I'm not actively afraid of going out. Usually, once I get where ever I'm going, I have a good time and I'm glad I went. But getting out the door is still a struggle.
At the moment I'm probably dealing with some mild depression. I'm so tired all the time, and my joints are giving me fits. Some days it feels like I'm never going to feel normal again. It's frustrating.