swelling/fluid retention in legs???

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New Member

Date Joined Oct 2007
Total Posts : 13
   Posted 10/29/2007 12:08 PM (GMT -7)   
Has anyone had issues with painful swelling/fluid in their legs??  Sometimes my legs seems so heavy and tight from my hips right on down.  The swelling is hard though- it isn't like pitting edema.  It also almost has a burning sensation- does this happen with crohn's?  Anyone out there with CD experience this????
Erin, 26, Pennsylvania

Regular Member

Date Joined May 2006
Total Posts : 167
   Posted 10/29/2007 5:08 PM (GMT -7)   
Are you on pred by chance? I noticed more fluid in my legs and face since I started a few weeks ago.
The pain comes and goes, it's not fun.
Male DX with CD May 2006 @ age 22
Tried Pentasa and Entocort, worked for a yr and a bit
Taking Prednisone 35mg, and now on Atenolol 25mg for fast heartbeat (thanks Pred!) and Restoril 30mg for the sleepless nights I have sometimes.

Regular Member

Date Joined Sep 2007
Total Posts : 330
   Posted 10/29/2007 6:05 PM (GMT -7)   
I have swelling in my lower legs, ankles and feed on pred. No real pain from that though.
Hope you figure it out -- lots of good advice here.
44 years old, newly diagnosed in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), Prilosec, Synthroid.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004), and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.

Regular Member

Date Joined May 2007
Total Posts : 79
   Posted 10/29/2007 7:00 PM (GMT -7)   
I have had problems with Eretha Nydosum (spelling is wrong) which is a dermatalogical condition that effects the skin. This causes swelling, discoloration of the skin (looks like bruises) and joint pain. This is what you may have and this is caused by Crohns. The only way to take care of it...is to get your Crohns under control. I have this every single time that I have a flare and it SUCKS.

Good Luck.....
Mis-diagnosed for two years--doctors thought I had RA!

Fistua surgeries in Sept 2006,Dec 2006 and Aug 2007
Centon placed in fistula track during last surgery..permanent open wound
Finally diagnosed w/CD & Fistulizing Disease in Jan 2007
Currently taking Remicade since May 2007

Regular Member

Date Joined Apr 2007
Total Posts : 218
   Posted 10/30/2007 1:29 PM (GMT -7)   
I had it this June. But it was very painful. I couldn't walk without pain meds. My feet, ankles and knees were very swollen with fluid. I went to the Rheumatologist and he put me on prednisone for 6 days, and it went away. My GI said it was from the Crohn's, but she wanted the Rheumy to treat it.
Age 41 female.
dx'd in April 2007 - feeling better now
4000mg Pentasa and 75mg 6-MP
Primal Defense probiotic by Garden of Life

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