I keep getting fistulas from remicade. I have gotten 2 fistulas since starting it june 5th plus I am more tired than ever and have constant headaches and muscle weekeness and pain. The joint pain has subsided at least.
I am due for my 5th infusion 11/13 and my Dr. visit was cancelled after the 4th infusion and now for this infusion and I can't see him until 12/11. So I have not had a chance to speak to him. I am really fed up with the neglect. He knows I am having problems.
I have no answers for you but I am going to Mt. Sinai in NYC 11/27 and plan to ask this very question. I will post to you when I get back!
Sorry to hijack your post but I started out just trying to let you know you're not alone! Remicade is not the miracle drug for all of us