Just wanted to throw my two cents in. I had 10 Remicade treatments over about a year and it worked almost immediately for me. No more pain! It also allowed me to completely come off of Prednisone and just take Pentasa. I did develop a scary allergic reaction that required Benedryl during the IV treatments, but that wasn't enough for me to consider stopping. Even though I felt "cured" my doctor and I agreed that I would stay on it indefinitely.
However, I've been trying to get pregnant for over a year now and to my surprise, after letting my GI know that I was pregnant in Sept. '06, he told me to stop the Remicade. I was surprised because he's very conservative and doesn't want to change what is working.
Unfortunately I miscarried at six weeks and was able to keep my Remicade schedule going. I became pregnant again this July and he again told me to stop - I again miscarried, this time after nine weeks so I would have to go through the induction phase again and since I was now pursuing fertility treatments (I'm 37) he told me to stop Remicade until further notice.
It's funny, because from everything I've read (including on this forum) and heard from my Rheumatologist who treats pregnant Crohn's patients occasionally, I was fully prepared to continue my Remicade. Maybe his decision had to do with the miscarriages or maybe it had to do with the fact that I'd been in symptomatic remission for so long (although an endoscopy still showed inflammation, but it hadn't spread).
I've now been without Remicade since May 2007 and fortunately, the pain (my main symptom) hasn't returned. I have been plagued with recurring urinary tract infections (a lingering side effect of Remicade?) and this mystery skin rash that I'm trying to get dx'd, but otherwise feeling good.
So, I'm not advocating getting off of Remicade - if I weren't actively trying to get pregnant (and that window's closing here in a few years) I would still be on it. And I hope to get back on it eventually, I just wanted to let you know that if you're even symptomatically under control for a long time - which it sounds like you are - things don't necessarily fall apart when you stop Remicade.