I am so new to this whole thing but the more that I read the posts the more I want to know about
Remicade. I started it in July of this year, and I am sad to say that I am clueless when it comes to what can be done with it.
I feel like I am just along for the ride and I want more control of the whole process.
Does anyone else feel like at about week 6-7 post infusion the progress that was happening is starting to go backwards? Can you change it so you get a infusion sooner? Any info that I can get on others experiances with this drug good and bad are welcome. Info on any side effects that anyone has had will be helful also. Now maybe I won't feel like I am going crazy! I never thought that Crohn's was this complicated. All I hear at work is "It's just Crohn's you can live with it." And I work at a hospital But as I am finding out it is not just Crohn's. There is so much to it. Everything has just happened so fast that i feel like i need more control. Is this an odd feeling or do other people feel this way?
I know that this should be up to my doctor to help me with but for so long I felt that I was going crazy. I only have family practice docs and general surgeons where I live so I have been misdiagnosed for so long, and I am not one to go to the docs too often, that I am afraid to marked as a "frequent flyer". When I call the GI's office i get the oh its you again feeling from them. So now I just try to go at it on my own. so I will take all the help and advice I can get!
One more quick question when should i not get my remicade infusion? Will the common cold affect my response to remicade.
Thanks for reading
Confused and sad
Post Edited (april07) : 11/4/2007 7:06:31 AM (GMT-7)