Thanks everyone for your responses. I was feeling pretty good for a few days when I was on 5 mg every other day, but generally I had really bad side effects on the prednisone (e.g. tremors, extreme weakness, muscle atrophy, tingling in arms and face, mood swings, acne, etc.). The exhaustion is new since I've been off of it. I was very weak before (couldn't walk more than a couple of blocks without getting tremors), but I didn't feel totally exhausted. It's like someone slipped me a sleeping pill. I guess I just need to be patient, but it's really tough feeling bad for this long. I just want to feel semi-normal again. On the upside of things, I don't have any active inflammation anymore, so if these prednisone residual side effects go away, then maybe I can start feeling half-way human again. It's really useful to know that people start feeling better, because my doctor told me that the exhaustion could take up to a year to go away and I felt like I wanted to start crying when he said that. He didn't mention the edema (swelling in my feet) or the headaches, so that freaked me out a bit. But, I also couldn't imagine living like this for an entire year, so it's helpful hearing that the exhaustion lifts sooner. Thanks again.
Female, 30. Diagnosed August 2007 with Crohn's Colitis. Asacol 400 mg 12 x day. Canasa, Cortifoam, just finished Prednisone (tapered from 60 mg). Orthotricyclin Lo, Calcium, Trinity (probiotics), and multivitamin.