BAD news on my colonoscopy today

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Veteran Member

Date Joined Jul 2003
Total Posts : 1256
   Posted 11/6/2007 5:10 PM (GMT -7)   
Well he could not get through even after bumping up my 6mp this was our 3rd try this year. The strictures are too tight to push through even with a pediatric scope. We wants to do a virtual colonoscopy /CAT scan but my problem is I have both hips replaced( due to A.S.) and the images get messed up. He is going to call the CT joint to see if there is a NEW machine that can take images with my hips. He is concerned about colon cancer that can/likes to hide behind strictures. I potty fine only twice a day as he says clinically I look great and am doing well but my strictures say otherwise. I have been on 6mp for 3 years looks like its done all it can. Next move is Humaria since I have horrible veins to do Remi.

oh well ,sm sad sad sad
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 11/6/2007 5:29 PM (GMT -7)   
Have you been feeling ok? I've been in pain on and off for about a year now. My doc found a stricture during my last colonoscopy and couldn't get through either. I went to get a UGI/SBFT and he got to see the length. I'm supposed to go in on Tuesday. They wouldn't tell me anything else over the phone. I'm wondering and worrying that it's something more. I get so paranoid about colon cancer.

He's thinking about Humira for me too. I've been on Imuran for about 5 years now.

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 11/6/2007 5:50 PM (GMT -7)   

My GI told me today that he's going to put me on Imuran at my next appt., in three weeks. He wants to give my prednisone more time to work and I've only been on it for 2 weeks. Anyway, do you have any side effects while on Imuran that are long-lasting? I've read the posts on the subject and the main thing I'm concerned about is infertility. I'd like to start a family in a few years and I don't want it to affect my plans. I understand the raised risks for lymphoma and such but is it really a gamble with the fertility thing? My doc didn't have much info on the subject...Any side effects you have noticed would be extremely appreciated, even if you don't know about the infertility thing.
26 year old female  diagnosed with severe Crohn's in Sept. 2007-suspected that I've had it for at least 3 yrs; diagnosed with anemia Aug. 2007. Currently taking Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg---was on Flagyl/Cipro for two weeks,(a few weeks ago), was supposed to be on it for three weeks but the cramping and diarrhea it caused made me stop
Now on Prednisone 40mg, stopped Entocort while on pred.
Ferrous Sulfate 325mg/daily for anemia

Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 11/6/2007 5:58 PM (GMT -7)   

I have been on 75mg of Imuran for 4 - 5 years now. I had no problems getting pregnant remained on the medication throughout the pregnancy. My daughter was born healthy. She still is. I just get achy sometimes and tired. It has done me a lot of good up until now.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/6/2007 6:02 PM (GMT -7)   
Hi SugarMarie, Well I hope the Humira works for you. I am on Remicade and it works great for me.
My prayers will be with you that Humira works for you.
Take care, TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Aug 2007
Total Posts : 65
   Posted 11/6/2007 6:52 PM (GMT -7)   

Sorry to hear that you are dealing with strictures in your colon. I can commiserate-- I recently found that I have 3 very long strictures in my colon, and because of them, I cannot have a colonoscopy done either. But, like you, I have been feeling pretty good--I each pretty much whatever I want and am not in the bathroom very much.

The sad thing is that I met with a surgeon who said basically my only choice is to have my entire colon removed and get an ileostomy. They cannot removed just the strictured areas because I would only be left with less than half of a colon. I was pretty devastated, but have been reading/posting on the Ostomies Message Board here, and it really does not seem like that bad of a thing once you get used to the idea. Like you, my main concern is colon cancer (which they won't be able to catch early because I can't have a colonoscopy done...!)

The only good thing is that if/when I do get an ileostomy, I would pretty much be cured of my Crohn's, which only affects my colon/rectum area. But, I feel like I am so young for this to happen...I am only 26!


I hope Humira works for you!!! :-)

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/6/2007 7:00 PM (GMT -7)   
ConsideringABag said...
The only good thing is that if/when I do get an ileostomy, I would pretty much be cured of my Crohn's, which only affects my colon/rectum area. But, I feel like I am so young for this to happen...I am only 26!
Just so you don't get your hopes up, an ileostomy is NOT considered a cure for Crohn's disease.  I don't think any doctor will tell you differently.  You may be lucky and never have more disease, but surgery will not prevent future occurences in different parts of you intestines. 
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 

Forum Moderator

Date Joined Feb 2003
Total Posts : 15152
   Posted 11/6/2007 8:35 PM (GMT -7)   
Aw Marie I hate to hear your news. I sure hope the Humira will work for you. I did Remicade for 3 1/2 yrs, I had horrible veins too. My dr sent me to a surgeon and he put a port a cath in, wow what a difference it made. Hugs, Susie

Regular Member

Date Joined Aug 2007
Total Posts : 65
   Posted 11/7/2007 4:12 AM (GMT -7)   

Studies have shown that if your Crohn's has resided solely in your large bowel for more than 5 years, the likelihood of geting it in your small intestine in the future is slim to none. I have had Crohn's for 11 years, always only in my large bowel (aka Crohn's colitis).

Thanks for the input, though. I know you just want me to be informed, which I appreciate. :) :)

I know there is always a chance, but I feel pretty good with the statistics my surgeon gave me.

:-) :-)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/7/2007 1:08 PM (GMT -7)   
Hi SM hope they can get some of the test done yu mentioned. So has your Dr. applied for the Hum. ? I am glad you at least are not having too many potty problems. Hang in there and stay in touch. THey couldn't get to see all mine gail
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