Hi Went to my first meeting for Chron's and Col..

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Date Joined Mar 2007
Total Posts : 4527
   Posted 11/8/2007 4:08 AM (GMT -7)   
Well I finally went to my first meeting and did get to meet others that have IBD .They are having a supper to raise funds for different things .Sometimes they have Dr's ,dietician or other speakers I guess.Some members have family members with IBD.They are going to put a walk on in June I guess. So for those that haven't gone to a meeting I thought I would let you know how mine went. I thought it would be interesting to have some other imput on IBD .For those that are bored at times and want something to do it would be a great place to get invovled in. Some people feel bored at times or find retirement a little boring.There was not a lot of people there but they all have knowledge of IBD .I did learn a few things so all in all I would say that it was worth going to and am planning on going back. Tell me some of your experience if you have or are going to the meetings.Tell me what interesting things they do .lol gail

Veteran Member

Date Joined Jan 2006
Total Posts : 3141
   Posted 11/8/2007 7:26 AM (GMT -7)   
Hey Gail! I went to my first local CCFA meeting late last year. I never went because I was afraid it would be a bunch of whining. I was so wrong. These people were great and I still go whenever I can. Unfortunately, our area only meets about once a month for 3 months in the fall and 3 months in the spring. They have a lack of participation and also problems with getting people to moderate. I am thinking about moderating so we can meet more often. I love the people here becuase they are some of the most informed, but it was really helpful to have face to face with people who know your neighborhood.
They do the walk thing, but hubby and I only participated once. It is hard getting people to sponsor you year after year. We are suggecting they do something like a pay to play golf tournament or bowling tournament. People donate more if they are participating in an activity. I used to be a curler, so I was thinking about a curling event to support the local group. My husband just joined the Elks--they are a community supporter and was thinking of involving them somehow. Until we have more active participation, I don't see a whole lot of special events happening.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 11/8/2007 7:44 AM (GMT -7)   
CCFA in Maine only has pediatric support groups but I do the walk every year!!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Veteran Member

Date Joined Jan 2003
Total Posts : 6117
   Posted 11/8/2007 5:57 PM (GMT -7)   
i have gone off and on for 15+ years. some whiners, most good people just wanting to help others and pass on info. glad you found a good group.


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/8/2007 6:45 PM (GMT -7)   
Thank You for your replies just hoping to fit in, it is a new thing for me and I am not the most sociable person, although I find I am quite comfortable here.It is great to hear what you are involved in with your meetings kind of still wondering what they are about. Our meeting is once a month too. .lol gail

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 11/8/2007 9:24 PM (GMT -7)   
I go to the ones we have and it is nice to meet other's that are going through the same as you.We only meet once a month I hate it because I would love to meet more offten.

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