ileostomy people question

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Regular Member

Date Joined Nov 2007
Total Posts : 74
   Posted 11/13/2007 7:53 PM (GMT -7)   
I have to ask the folks who have an ileostomy if they ever get dehydrated quickly.
I can get a cold or flu or be out side in the heat and become dehydrated in no time.
If I have mostly water in my bag and get up 3-5 times in the night to empty I can tell I am getting sick and will start to feel week and dehydrated and my voice gets week and I have to make sure I hydrate myself.
This has put me in the ER 2 times in ten years but I have many times were I pulled myself out of dehydration.
Does any one have a similar situation? I plan on consulting this with my specialist my next appt.

Post Edited (MDdave) : 11/13/2007 8:54:38 PM (GMT-7)

Regular Member

Date Joined Aug 2005
Total Posts : 50
   Posted 11/14/2007 4:55 PM (GMT -7)   
Yes, this is something you should take seriously and maintain as strictly as possible. If I remember from one of your other posts you've had 17 feet intestine removed... since we only have 17-24 feet small intestine and 5 feet large, I assume you have short bowel and fast transit time. Under these circumstances Anti-motility medications are what is needed to maintain hydration... it slows the intestines down giving it a little more time to absorb fluid. Even with meds you have to keep a close eye on it... Too many episodes of severe dehydration can be damaging. You didn't mention what intestines you have left to you and that comes into play with absorption of fluid.


Crohn's disease diagnosed in 1974 at 13 years of age.  First surgery at 18 removed entire colon, rectum and 3 ½ ft of small intestine resulting in an ileostomy.  Multiple surgeries since, with only 4-5 ft of small intestine remaining at this time.  What remains is in bad shape with two severe fibrotic strictures. Very painful.  Any further surgery would likely put me on TPN, which I've been fighting to avoid with anti-motility meds and pain management.  Silver lining - My hubby of 21 years is the kindest man in the world and my hero, and our 18 year old son is a constant source of pride and joy for both of us.

Veteran Member

Date Joined Jan 2003
Total Posts : 6117
   Posted 11/14/2007 5:33 PM (GMT -7)   
MDdave. had that problem when i had my Jujenostomy. and to an extent have it now with the samll amount of intestine i have left. (about 80cm) (2feet) give or take. fluid runs right through me. . of course i can rehydrate myself with an IV whenever i need to, but that wont work for you. as you probebly have figured out already, you can tell when your body is giving you signals. twice in ten years seems to be a good record for anyone in your situation. i say .

Blaze, would love to discuss TPN with you. the fears, the trouble and the relief. have you vivited my website? check it out and drop me a line with any questions i might help you with. also can answer some questions on intestinal rehabilitaion to better utilize what you have left.

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