p.s. I totally know what you mean about
the "you need to remain positive talk." =0|
Don't know if you got this either, but I get the "this is your fault because you pushed yourself talk and if I would just "rest" that everything will be fine." I know that if we DO rest, things will heal quickly but things won't be "fine"--we will just have to look at the world a different way and learn to live with CD.
Make sure to advocate for yourself too. Like so many others on here have said, the best docs can't help you if you can't tell them REALLY what's up. I think it is good too that your mom can hear from the doc what is going on with you because sometimes we can show them literature, we can tell them the exact same things that a doc would say, but cause it's coming from a 3rd party it clicks better.
one more thing...... I also can empathize that you are afraid of the next step of meds. I can tell you in my experience I was terrified and would have rather NOT gone on imuran from what I read about
it. I literally tried everything not to get on it because I wanted to give the asacol a little more time but when I got to the point where things didn't feel like I was getting better and I was actually regressing, I called the doc and said, "Put me on it. I don't care anymore, I give up-- just make me better."
There ARE side effects to everything (I lost hair on asacol AND some on imuran but it seems to have stopped now) and you do have to weigh the options of everything but if they suggest something to see if THAT would work and you're at a loss, maybe you can think a bit more about
it and try the next step. I am fortunate in that my little leap of faith worked out and made me feel a lot better but some others have to try 2 and 3 more times till they get their right combo down.
That's why I appreciate this site SOOOOOOOOO much because it's nice to hear that we're all going through the same things in our own ways.... I don't know what I would have done if I didn't bump into here.
Newbie - 35 yrs old Diagnosed: 08/03/07
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II
Post Edited (malakai) : 11/15/2007 2:49:17 AM (GMT-7)