I'm so "sick" of this.

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Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 11/16/2007 7:02 PM (GMT -7)   
I'm really just venting right now. I've been flaring for about 2 months now. I've had a colonoscopy and a UGI/SBFT. They found inflammation around a stricture. I was told the the GI was going to consult with the Humira rep about the stricture issue and then he would bring me in to start the treatment (if he gets the ok).
I am at the end of my rope here. I've been sick as a dog since yesterday morning. Fever, cramping, vomiting, etc. I feel so tired. I called the GI to beg him to hurry up, and guess what? He's on vacation until the Monday after Thanksgiving.  That means I have at least a week to wait to get in. I don't know what to do.
I have a beautiful 19 month old daughter that I've been too sick to play with. I'm tired of being confined to a couch all day.
Do any of you have any suggestions as to how in the world I can cope with this until the doc is back? A week seems so long to me!
Thank you so much for your time!

Regular Member

Date Joined Aug 2006
Total Posts : 443
   Posted 11/16/2007 7:25 PM (GMT -7)   
If you're game for it, you could try going on a liquid diet using Ensure or Boost instead of solid food. It's an old treatment for Crohn's but can be quite effective. If it works for you, you're likely to start seeing at least some improvement within two or three days (e.g., less pain, less fever, more energy).

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/16/2007 7:31 PM (GMT -7)   
What about going to the ER. Maybe you could go in and get some treatment started before your doctor gets back. Sure wish I could be more help, and hope you get feeling better soon. God Bless!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 11/16/2007 9:13 PM (GMT -7)   
Mindy, the only thing that I can suggest, is the same as Nanners. If things are getting really out of hand, you may need to get IV fluids,
dehydration can make you feel pretty lousy, and if you've been vomiting that could be your problem. A good 24 hours of IV fluids and
meds may have you feeling much better. I wish you luck sweetie...

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 11/16/2007 11:24 PM (GMT -7)   
I agree.  It is so easy to get dehydrated - and if you are, and get the IV fluids, you definitely will feel so much better.  It would be a start...

Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 11/17/2007 1:00 AM (GMT -7)   
I agree, if it gets too bad, go in to the hospital and get some treatment. I've been known to do the boost diet myself, and it really does work. But I don't know about when being that bad off. I hope you start to feel better!
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/17/2007 4:00 AM (GMT -7)   
Hi Hopefully your fever won't last too long.I guess the IV's and I know prednisone brings things around pretty fast. If you are having bad pain that isn't going away I would get to the hospital they can get you back on your feet again. Give the little cuttie a hug from us. Hope this lets up and a liquid diet I imagine you are on it now though .Take care and let us know when your feeling better. lol gail

Veteran Member

Date Joined Nov 2007
Total Posts : 4386
   Posted 11/17/2007 2:21 PM (GMT -7)   
I agree that you shouldn't have to wait around to get help from your doctor..go to the ER if you need to. What is it with the docs? I called mine Friday am with a medication question, and he or his office never even returned my call. Are they all the same. Does anyone actually see a GI with 24 hour coverage?
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 11/17/2007 4:40 PM (GMT -7)   
Kasper - thanks for the offer. I'm pretty desperate right now! I would consider taking those extra Humira syringes and going to jail if I didn't have my daughter to look after! :)
This illness can really make me crazy. I'm going to call the docs on Monday and beg to see another GI doctor in the group. I can't wait any longer. I'm on a liquid diet for now. I will go to the ER if I can't take it any more. It seems like I've gone there a few times and left no better than I was when I got there.
What a crummy time of year to be sick! It seems like every commercial on TV these days is about Thanksgiving food!!
Thanks everyone!!

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 11/17/2007 7:25 PM (GMT -7)   
Feel better. Maybe try a little Gatorade in a syringe if you can't tolerate to drink,that way you will atleast get some fluids and electrolytes into you,how about ice chips? I think it's a good idea to start with one of the partners in your Gi's practice. smurf    My son saw this icon and asked me to post it for you since you don't feel good. (he's 7)
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