this just sucks now.

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Veteran Member

Date Joined Jan 2003
Total Posts : 6117
   Posted 11/20/2007 12:05 AM (GMT -7)   
another trip to ER for my fevers. did not go till it was over 104. this is just plain sucking now. they are getting harder to take each time. and nobody seems to be able to do anything! i want it stopped, i want it terminated, i want it fixed!  been in bed since friday night except forthe er trip. tried to eat, uh , no. somebody fix me!

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 11/20/2007 12:28 AM (GMT -7)   
Oh randy I sure wish I could fix you,man as long as you have been dealing with this fever you would think that someone would have fiquerd (sp)what is causing this.hand tight and know we arew for you day or night.

Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 11/20/2007 1:38 AM (GMT -7)   

hang in there randy.  Just like Curley, I wish there was something we could do to help you out.  You are an inspiration to me.  I'll keep you in my prayers..... 

<virtual hug>


Newbie - 35 yrs old Diagnosed: 08/03/07
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/20/2007 4:31 AM (GMT -7)   
Hi Randy, sorry you not feeling well. My prayers are with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Poopington McToot
Regular Member

Date Joined Jul 2005
Total Posts : 315
   Posted 11/20/2007 6:38 AM (GMT -7)   
sorry to hear about that randy. my new crohn's philosophy is that i'm like an old hammer with a loose handle. i still have some utility, but every now and then i need a new piece of duct tape to hold me together.

sounds like you're ready for a new piece (or roll).

hope you're feeling better soon and can enjoy the holidays at home instead of the hospital.

Poopington McToot
It's easy to grin, when your ship comes in...and you've got the stock market beat.  But the man worthwhile, is the man who can smile, when his shorts are too tight in the seat.

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 11/20/2007 7:19 AM (GMT -7)   
I'm so sorry to hear about this vicious fever, Randy.  104 is awfully high and must be absolutely miserable.  Did they help you at the ER or give some explanation?  Does Tylenol bring it down whatsoever?  Please hang in there and feel free to vent away...but we definitely need updates.

Co-moderator - IBS Forum

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 11/20/2007 8:07 AM (GMT -7)   
Randy, I'm so sorry, if only there was something that could be done! Hopefully our support and prayers will help a little. Man, you've
put my things into perspective, at least for right now. I hope you start to feel a little better soon. LOL

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 11/20/2007 9:11 AM (GMT -7)   
I hope your feeling better soon!!! Sorry you feel so bad sad

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/20/2007 10:14 AM (GMT -7)   
Hi Randy sounds like you have an infection going on somewhere I could give you a list all the body parts but I guess you know what parts you got, have you a cold or anything with this fever .Have you had a CT lately to rule out abcess? Sure hope you get better soon and keep in touch. lol gail

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 11/20/2007 10:17 AM (GMT -7)   
what a drag, Randy. I am so sorry. take care, yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

Regular Member

Date Joined May 2006
Total Posts : 29
   Posted 11/20/2007 6:36 PM (GMT -7)   
Randy, get in touch with GI immediately, could be abcess, fistula, etc.....was WBC elevated? what about CRP?
41 y/o female. CD for 4 years.  Have taken Asacol, Prednisone, Colozal, Imuran and Remicaid and Humaria.  Only effective one was Remicaid until I became toxic and having elevated liver functions, ANA = 525 and remicaid induced Lupus.  Now, I can't take anything.

gemini kiwi
Veteran Member

Date Joined Nov 2006
Total Posts : 1136
   Posted 11/20/2007 7:36 PM (GMT -7)   
Feel better soon Randy.

Regular Member

Date Joined Jul 2005
Total Posts : 207
   Posted 11/20/2007 7:45 PM (GMT -7)   
Randy.. I am so sorry to here your are not feeling well. Things will look up soon. Keep us updated. Were thinking about you

28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 60mg for PG ...  :(

Veteran Member

Date Joined Apr 2007
Total Posts : 532
   Posted 11/20/2007 8:12 PM (GMT -7)   
Just when I started feeling sorry for myself, I read this. You have been thru the mill and just can't understand why they can't find the source of your fevers. I think last time they just stopped on their own? Could you have serum sickness? Are you having any pain? Hope you get well for the holidays.
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 11/20/2007 8:23 PM (GMT -7)   

I had a fever when I got sick a few weeks back, it got up to 104 and when I went to my GI dr (after my colonoscopy) he put me on Cipro and Flagy b/c of an infection.  My fever went away soon after I started those 2 (plus Prednisone and Tylenol3 and 6mp).  I don't know what your situation is but I have heard the ER isn't always the best equipped to diagnose problems, what does your GI dr say?  I am sorry you are going through this. :(


32 yrs old, Crohn's colitis

Veteran Member

Date Joined Jan 2005
Total Posts : 1510
   Posted 11/20/2007 8:31 PM (GMT -7)   
hey rando,

i know you've been dealing with this for a long time. it's just unbelievable that your docs can't at least come up with an explanation, if they can't stop it. i know this is gonna sound stupid, and i'm sorry if you've already covered it in the last year, but, ya know when a kid has a dangerous fever and the doc instructs the mother to fill the tub with cold water and immerse him/her? do they do that you you in the hospital? or pack you up like fresh tuna with ice packs in your bed? i know it would be a bummer to keep taking cold showers, but can't a fever kind of feed on itself? if you keep taking it down, maybe you could get on top of it. again, i feel kinda dumb suggesting this stuff, cuz you've prolly already done this a million times. maybe a little freon down the ol tube..........i dunno, man, i just hate seein' ya hurtin'


ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 11/20/2007 8:39 PM (GMT -7)   
Randy, I hope you feel better soon. Do you have a central line for TPN? (I thought I read about that in some of your posts). Are they checking your blood cultures? Cultures of your IV? I hope you're fixed soon and the suckiness stops, STAT!
CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira, Imuran and Entorcort. Hope to dc Imuran and Entorcort within one month of starting Humira.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 11/20/2007 9:00 PM (GMT -7)   
Just ditto'ng all the well wishers. I hope they get on that fever for you. VietVet has a pretty good idea there. When I was 4 I had pnemonia and chicken pox and my fever was in the 105's. They put me in a chilled oxygen tent. I was miserable but it brought my fever down quickly. I had to stay in the tent for a few days but that was probably more due to breathing problems than the fever. Maybe you can go to a resturant and ask to hang out in the walk in freezer for awhile. It would be cheaper than a hospital stay!! Hope you get to feeling better soon!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 11/20/2007 9:05 PM (GMT -7)   
Hang in there Randy...good thoughts are coming your way from all over.

Regular Member

Date Joined Jun 2003
Total Posts : 280
   Posted 11/20/2007 11:12 PM (GMT -7)   
Add my good thoughts to the others. So sorry to hear you're still having these stinking fevers. Wouldn't it be great if VV was on to something? Hope you're feeling better. Best Wishes, Bets

gemini kiwi
Veteran Member

Date Joined Nov 2006
Total Posts : 1136
   Posted 11/21/2007 1:46 AM (GMT -7)   
They bought these huge fans into my room to help cool me down when I was in hospital and shoved painkillers where the sun don't shine every few hours, for days on end.. I recall my mother coming to visit one night with my husband and all she did was complain how cold she was in my room.!!! Bizare.

I hope your temp has come down Randy.

Veteran Member

Date Joined Jan 2003
Total Posts : 6117
   Posted 11/21/2007 3:12 AM (GMT -7)   
  thanks everyone for the pep talk.. to answer some of the questions posed,
  yes i have a central line almost 5 years never had an infection.
  no tylenol does not help me
  yes i use a big fan alternating with BIG blankets when the chills hit
  i was told by a nurse after the first few to use ice packs in the arm pits, helps a bit
  i sleep on towels and toss em on the floor and change em when they get soaked
  yes i have CT scans about every 2-3 months
  no one thinks its CD related
  my white count never spikes (well it was 15k on sat) but thats not real high(mostly 8-10)
  they used to come about every 6-8 weeks. 4 since beggining of sept
  all tests for auto immune things, lupus,RA,etc... neg. all for infections neg. allergies neg.
  i have had tests for everything in the drs playbook.
    blood cultures done saturday show no sign as of tuesday. my favorite nurse is working thanksgiving and is gonna call me with the results.
 saw pulmonologist tuesday. still thinks lung nodules are tiiiny liiittle clots that come and way to be certain unless they take out a piceof my lung WHILE im having a fever. yeah good luck with that one! im keeping whats left of me thank you very much.
 also saw my IV guy and we decided to go ahead and change my central line. maybe in a couple of weeks. CANT have a fever for that one. geesh, there getting picky. 
 so the plan is to wait a couple weeks, get everything set, go up to seattle take a shower with what is basically bleach, have a new rubber tube shoved under my skin puncturing my jugular and shoved down to my heart, while almost at the same time the old one is and i qoute " cut from the skin and ripped out like a NG tube" . sounds like fun!
  oh yeah forgot to mention i will have to shave my manly chest hair from neck to belly button. (oops! forgot i dont have one!)
  anyway if i still have fevers after that , we did it for nothing. yeah!
  oh and the great news is next time i have a fever, i get to take 5 days of prednisone. just to see if it helps if its an inflamation thing. that should improve my mood tremendously.
 ok , its long, its a rant, but if ya read this far ,  "you like me! you really like me!"
          my new qoute for today  "conductor! stop this train, i want to get off!"

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/21/2007 5:02 AM (GMT -7)   
Hi and yes we really like you. Well I see they got a plan going for you if they think the pred might work why haven't they tried it ? So your manly chest is nakit.Wow we didn't know . Just hope you are feeling somewhat better by now. Cause you know we love yah!! Hope you got a good nurse picking up all those wet towels your throwing around. lol gail

Veteran Member

Date Joined Oct 2006
Total Posts : 2079
   Posted 11/21/2007 9:57 AM (GMT -7)   
I'm so sorry to hear this. You are such an inspiration to so many of us, and living lesson as to how much a person can go through gracefully and with a sense of humor. I'm praying that God will grant you an extra measure of grace to handle all that's going on, and to get better ASAP. -Joy
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Regular Member

Date Joined May 2007
Total Posts : 150
   Posted 11/21/2007 10:39 AM (GMT -7)   
Hey Randy,

I'm gonna chime in here with a "GET WELL SOON"! I will be praying that you will have a wonderful holiday season and that you feel much, much better, very, very soon! Big hugs coming your way.

P.S.--I bet your wife will come to like that smooth, sexy, hairless chest! Hey, I love a bald-headed guy, why not a bald-chested one! LOL!

Everyone here at HW has their fingers crossed for you! So please keep us posted on how you are doing when you can.

OH, and one more thing, if you do the prednisone thing, you will have company, cause I am about to start another round of it. YUCK! Well, it beats the taste of dog a** in my mouth from the Flagyl I just finished. :-)  (And no, I have NEVER actually tasted dog a**, its just the best description I've got for the taste)


CD since 10/2005
Asacol 2 pills 3 times daily
 Imuran 100 mg once daily
Flagyl 250 mg 3 times daily
 Lomotil as needed for cramps and D
B-12 supplement 1 mg daily
Women's Multivitamin
Biotin 1mg
Calcuim with Vitamin D 600 mgs
Pepcid AC OTC 1 daily
Synthroid (Thyroid)
New Orleans, La, US

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