thanks everyone for the pep talk.. to answer some of the questions posed,
yes i have a central line almost 5 years never had an infection.
no tylenol does not help me
yes i use a big fan alternating with BIG blankets when the chills hit
i was told by a nurse after the first few to use ice packs in the arm pits, helps a bit
i sleep on towels and toss em on the floor and change em when they get soaked
yes i have CT scans about every 2-3 months
no one thinks its CD related
my white count never spikes (well it was 15k on sat) but thats not real high(mostly 8-10)
they used to come about every 6-8 weeks. 4 since beggining of sept
all tests for auto immune things, lupus,RA,etc... neg. all for infections neg. allergies neg.
i have had tests for everything in the drs playbook.
blood cultures done saturday show no sign as of tuesday. my favorite nurse is working thanksgiving and is gonna call me with the results.
saw pulmonologist tuesday. still thinks lung nodules are tiiiny liiittle clots that come and go.no way to be certain unless they take out a piceof my lung WHILE im having a fever. yeah good luck with that one! im keeping whats left of me thank you very much.
also saw my IV guy and we decided to go ahead and change my central line. maybe in a couple of weeks. CANT have a fever for that one. geesh, there getting picky.
so the plan is to wait a couple weeks, get everything set, go up to seattle take a shower with what is basically bleach, have a new rubber tube shoved under my skin puncturing my jugular and shoved down to my heart, while almost at the same time the old one is and i qoute " cut from the skin and ripped out like a NG tube" . sounds like fun!
oh yeah forgot to mention i will have to shave my manly chest hair from neck to belly button. (oops! forgot i dont have one!)
anyway if i still have fevers after that , we did it for nothing. yeah!
oh and the great news is next time i have a fever, i get to take 5 days of prednisone. just to see if it helps if its an inflamation thing. that should improve my mood tremendously.
ok , its long, its a rant, but if ya read this far , "you like me! you really like me!"
my new qoute for today "conductor! stop this train, i want to get off!"