Well I just typed a whole huge post and let it sit too long and lost it---YUCKO!
I have to say: WOW, WOW, WOW, and WOW! I have just read about 30 pages of this forum and holy cow I can't believe the wealth of information that is here! The support, the caring, the sympathy and empathy....
As you might guess from my sign-on name, my DH was just (I think tentatively) DX'd with Crohn's. Has colonoscopy last Thurs, doc showed us pics of colon section with 8-10 "ulcers that are inidicative of Crohn's" and put him on Pentasa 1,000mg twice a day. Had the small bowel (that's upper GI, right?) test today--the one where you drink stuff and they watch it travel through.
1) if he has "ulcers indicative of Crohn's" and was put on Pentasa; doc took biopsies of ulcers; can we finally say we know what's been going on the past 8 months?
2) is there any other reason for ulcers in the colon? don't know what section of the colon it was exactly, but MUCH of his pain is in the rectal area, inside (he says it feels like the muscles you would use to hold in a BM).
3) he has also had various "mystery pains" in his groin, hips, pelvis, scr***m (he does have a large varicocele, 20+ years) for which he takes oxycodone 5/325 (he says that rarely takes care of all the pain)
4) he was given a Celebrex script 2 days before the colonoscopy because he was taking max doses of Motrin along with the oxy (says combo of those 2 helped better); but now, wonder if he should take Celebrex due to the ?Crohn's
Not sure if my questions are concrete enough; I guess what I am asking is whether we can really call it crohn's or should we wait for biopsy/upper GI results? He has also been suffering from depression/panic/anxiety for which we are still working on meds. I feel that the depression/panic/anxiety stems from not knowing what has been the problem all these months.
He has always had a "fussy" stomach, years ago was told IBS, but never had any tests for it. He doesn't have constant D, but with the meds he is on, he should be constipated, not having D for 3-4 times in the a.m. all at once!
Well, thanks for reading all this! I just want to help my beloved!
--new crohn's wife