Newly Diagnosed and scared to take 6mp

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New Member

Date Joined Nov 2007
Total Posts : 5
   Posted 11/25/2007 9:02 PM (GMT -7)   
I am 32 and I was just diagnosed with early stages of Crohn's on 9/2007.  My first symtom was a fistula in 4/2006 for which I had surgery and a c-ton installed. I had no symptons prior to that, nothing, no diarrhea, no pain, nothing.  After the surgey I asked the doc if the fistual could be from crohn's because I was curious, and he said he saw no inflamation to indicate such and said my fistula was just bad luck and sometimes they just happen.   Well, after a month with the c-ton, the fistula healed and i was good agian. 
Then 4/2007 I was given some antibiotics for tooth surgery and I immediately started with real bad diarrhea. I stoped the antibiotics and the diarrhea got a little better, but it didn't stop completely from that point on. Some days water, some days just soft, but my bowel movements were not normal.   The diarrhea continued and in 8/2007 I started to see signs of another fistual starting and I went to the surgeon and he did immediate surgery and installed c-ton which I still have today.  The fistula continued to grow after the surgery and they had to take me back again after 4 weeks and now I have a second c-ton.
 The strange thing is that after the surgery, the diarrhea completely stoped.  Now what does surgery have to do with stoping diarrhea I thought.  Well. during the surgery, I got flagel y cipro intervenusly,,why did this stop the diarrhea? Do I really have crohn's or could I have something else? I just had my crohn's doc do parasite studies on my stool samples just to be sure.
After this last surgery the doc ordered a colonoscopy and took a biospy and they did barium xrays and this is where they saw the early signs of crohn's.  Now they want to put me on 6mp saying this will heal the fistual.  From what I have been reading here, these drugs can cause a lot of side affects and this really scares me to death.  Because my crohn's is so mild, do I really need 6mp?  Does this really cure the fustula?  Are there other drugs less strong?  Has anyone here tried the diet approach to controlling crohn's like stated in the book "Breaking the Vicious Cycle"? 
Age - 32
Diagnosed with early stages of Crohn's 9/2007
Small inflamation in small intestine, small inflamation in rectum.
Only symptoms are occasional diarrhea and fistual
First fistula 4/2006 cured 8/2006 after surgery 
Second fistual 9/2007 - still have 2 ctons

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 11/26/2007 5:42 AM (GMT -7)   
Side effects from 6mp are relatively rare, and usually quickly reversible if they appear. It is the drug of choice for many GIs and patients here. If you have fistulizing disease you probably do not want to fool around with the bottom-tier drugs, and 6mp is far less potent, as far as side effects, than the top-rung drugs like remicade. In your position I would give it a try and remember that this drug can take up to 90 days to reach full effectiveness.  

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/26/2007 6:35 AM (GMT -7)   
Hi Alexandra I would like to say welcome to HW and hope you find it as informative and helpful as I do. I know having CD takes some getting used to and I found learning about it helped me. Some of the meds are scarry that's for sure but so is surgery. Without maintenance we would probably need more surgery. You have the fistulizing CD so it causes some extra problems that some don't have to cope with,I too have the fistulizing kind. Your Dr. feels that you need 6mp to maintain your CD not everyone has a lot of problems with there meds. A fistula is a complication of CD and most of us find them a little difficult to cope with at times. My concern here if it were me would be getting more and perhaps in different places. Hope you find this helpful and keep in touch. lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/26/2007 6:45 AM (GMT -7)   
Hi Alexandra Welcome to HW. I have been on Imuran for over 2 years. Which is a 6MP drug. I have had no-side effects from this drug. Your doctor will do blood test from time to time. I hope the 6MP drug works for
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Nov 2007
Total Posts : 47
   Posted 11/26/2007 6:47 AM (GMT -7)   
I took 6mp for several months and it wasn't the drug for me. That's not to say that it won't work for you! Your doctor must feel that the benefits outweigh the risks. Talk with your doc and ask him what to look for. Also, make sure your blood work is monitored. I had a blood draw monthly. I know a common side effect is pancreatitis. If after you've discussed the pros and cons with the doc, you still feel like you don't want to give it a shot, let him know you'd like to be made aware of alternatives! It's difficult because each person's disease is different and our responses to medication vary. Good Luck!
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