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Regular Member

Date Joined Oct 2007
Total Posts : 42
   Posted 11/28/2007 12:38 PM (GMT -7)   
I've been on Infliximab for a year now, and although it works great and has given me a life back, I still have to use enemas to keep things at bay. But my doctor has jus informed me that he doesn't want me to continue using steroid enemas becasue the risks etc, and has prescribe asacol ones for me use. But they don't fact I seem worse using them than if I was to use nothing. And I must admit I've gone back to using the steroid what do i do? Use the steroid ones and enjoy being Crohn's free, even if it puts me at higher risk of osteoporosis or use nothing and have my symptoms return? Why is that when somethign works for us, we can't use it anymore?? arghhhh!
Advice please

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 11/29/2007 1:01 PM (GMT -7)   
SKR, i don't use those but I figured I would post a response to bump your message up to the top... 
Maybe if you give the asacol some time? I know that med takes some time to start working. I took it for a little while and it did not help me so I went to pentasa, imuran and entocort and this combo is working so far.

good luck!


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 2:57 PM (GMT -7)   
Why doesn't he want you to continue with the steroid enemas?? For me those are the only enemas I use when dealing with proctitis and I've been on them for as long as 14 months or so before tapering off.


My bum is broken....there's a big crack down the middle of it!  LOL  :)

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