New here - just diagnosed, med question

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Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 11/30/2007 4:32 PM (GMT -7)   
  Hello anyone out there with cd.  I am 48 and was just diagnosed 2 weeks ago.  I've had problems with food allergies for years and only had small bouts of painful bowel movements so it came as a surprise.
I currently have ulcers through my colon and a horrific one in the rectum that is causing quite alot of pain.  I tries Asacol, but after 10 days my knees swelled up and i could not walk.  I'm not sure it thats what caused it but the dr took me off and am now on prednisone and Cipro, just waiting for something to kick in and give me some relief.
He wants to start me on Humira, but after reading about it i'm scared to death of the side effects.  This is all brand new to me and i'm totally lost.  Any advice on Humira?  Am i destined to have many surgeries?  Is there any NATURAL products that work?  I'll take any advice i can get.  Everything i read makes me feel like this is a death sentance!    HELP

Post Edited By Moderator (Ides) : 11/30/2007 5:39:21 PM (GMT-7)

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 11/30/2007 4:58 PM (GMT -7)   
Welcome to Healing Well, the people here are so supportive and it really helps to have people who understand something that is so scary and new to you. I know how you feel, we all do I'm sure. I was terrified when I had to start the 6mp and ended up not responding well and got put on Remicade. Same scary side effects. I learned that the risk of the side effects are better than life in flare.
Some people get surgeries, some don't. Everyone is different. It is important to research and learn as much as you can about CD- knowledge is power! There are some great books like Jill Skylar's The First Year of Crohn's Disease and Ulcerative Colitis. She also wrote one called The Gifts of Illness, a reconsideration. Both are helpful, check them out!
I use the natural methods with the medical side too. I take Lactobacillium Acidophilis pills, fish oil, calcium (important if you took pred), magnesium and a multi vit along with my scripts. I think the more you know about this disease the better off you are :)
There are a lot of people on humira here, check some of the posts out. You are not alone!! Just try to reduce stress and eat foods that are friendly to CD (no skins or raw veggies, etc).
Sending you hugs! I know it is scary and new right now but there are so many people living with this disease and enjoying life. It may not seem like it but it will be ok, much love and good luck!
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa and Seaonale, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 11/30/2007 5:45 PM (GMT -7)   
Hi and welcome, I'm sorry you having some nasty issues right now. I'm afraid I can't give any advice on Humira, but I'm sure there will
be someone along who can. All I can tell you to do, is keep coming here. The more you learn, the less frightening it becomes.

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Feb 2006
Total Posts : 842
   Posted 11/30/2007 5:52 PM (GMT -7)   
Welcome to the board, and I completely sympathize with how you're feeling right now. Getting diagnosed and dealing with the aftermath is overwhelming.

I'm on Humira right now, and I was previously on Remicade. Neither gave me side effects whatsoever, at least until I had a reaction to Remicade, but that was after doubling my dose. With Humira, the injection site is a little sore for a day or two, but nothing else. It's really not bad giving myself a shot either. And, it's helped me so much. I didn't realize how poorly I felt, even when I was on Remicade, until I started Humira.

The one thing about me is that I've run through nearly every medication there is out there, and I've done all that in just under 2 years. So, for me, if/when Humira stops working, I might be looking at surgery. But, it would be my first, and really, that isn't too shabby. Some people only have a couple surgeries, and some people have lots, it all depends.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms <--This link will be changing, but for now it works!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 11/30/2007 5:52 PM (GMT -7)   
Hi lilgeniexol! Welcome to Healing Well! I edited your post only to add a subject line to your thread. Readers then have an idea what the thread is about.

One of the best things to do is to get educated about Crohn's disease by reading about it. Healing Well has a Crohn's Resource Center to help you. The CCFA also has good information on a variety of subjects related to Crohn's including the emotional aspects, living with a chronic disease, finding a support group etc.

I am somewhat older than you and knew for over 25 years I had more than a "spastic colon" that so many docs had diagnosed before. I was not the least bit surprised to learn I had CD, in fact I was pleased to have a name for my problems. I started Humira 2 months ago after being on Remicade for almost 3 years. My gut continues to be in remission for which I am very thankful. I am no longer dealing with the constant diarrhea, the pain, the dietary restrictions, etc.

Check out these links to learn more about CD:
Healing Well's Crohn's Resource Center
Crohn's and Colitis Foundation of America

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Post Edited (Ides) : 11/30/2007 5:51:24 PM (GMT-7)

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 12/1/2007 12:42 AM (GMT -7)   
Natural remedies include the SCD diet which you can check out at as well as the Maker's Diet. You might want to check out CrazyHarry's post, because he has been trying out different remedies.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/1/2007 3:10 AM (GMT -7)   
Hi Welcome to HW and yes a new diagnosis can be scarry but as others mentioned we learn about this disease and the support here helps keep some of the worry away much easier with friends and a way of finding out what others know and have gone through. It will be good when your meds kick in and you get some relief. Everyone is scarred of the bigger drugs at first but I guess some find it necessary .We usually keep our B-12 checked as many of us have had low B-12. I follow low roughage easy to digest foods which helps keep the pains away. I also take a multi vitamin and mineral supplement. Sometimes it takes a bit of trying to find the meds that work best for us. The good thing is you know what is wrong and have now started some treatment . Keep in touch and let us know how you are doing and ask your questions everyone is very helpful here. lol gail
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