After reading this thread, I have decided we need to start a prednisone anonymous forum. And our family/sig others can go to predinon. I have been on pred since Jan this yr. all except for jul and aug. I was on remicade and thought I could wean off ok. Then had a reaction to the remicade and had to restart pred before humira could be started. The most I was on was 40 and the least 10, Also I am on entocort 6 mg and cutting down to 3 now that I have been on humira for 2 mos. Feeling a lot better in my joints. But every time I tried to cut down, I'd get the joint pain and diarrhea. I just have to bear with it for a week or so and then things improve. My doc told me that if I got down to 5, that would be ok. I believe your adrenals kick back in with that dose. Panayo, I also had "ileitis" and "regional enteritis". Gosh I'm 40 yrs into my disease. My side effects are numerous. Sweating, 30 lb. weight gain, (was always size 6 or 8), grouchy, fat pads cheeks and back of neck, bruise easy, thin skin, increased body hair, thank goodness I am blonde/gray, even my eyebrows are getting bushy. I have lost almost 10 lbs since weaning down to 10.
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures