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Regular Member

Date Joined Nov 2007
Total Posts : 38
   Posted 12/5/2007 9:20 PM (GMT -7)   
I went to the doctor today. The only problem is that my normal doctor is out of the office with a family emergency. The doctor that is taking his cases while he is out put me on 20mgs of pred daily until he is back in the office, which is hopefully next week.

This doctor also put me on Lonox which is suppose to help slow my intestines down. I was on it when I first started having symptoms in 2003 but it didn't help. I am trying it again. On a good note this doctor was going to recommend to my regular doctor, when he gets back, that she thought I should be sent to UCSF.

On another note I go and see a spinal specialist for my herniate disc Wednesday next week. Hopefully I can get in to the digestive center as quickly as I was able to get in to the spinal center.
Still not diagnosed. Problems since 2003

Current meds:
Prednisone 5mg every other day,
Donnatol 12.5mg as needed for cramping (doesn't help),
Prevacid 30mg daily


Other issues
Depression taking paxil 30mg daily
Injured Right knee with 2 failed surgeries
Herniated disc t11-t12 being treated


I am currently on disability for my knee awaiting retraining.

Regular Member

Date Joined Jul 2007
Total Posts : 24
   Posted 12/6/2007 7:31 AM (GMT -7)   
You haven't been diagnosed? Not seen a gasteroenterologist? A referral to a G.I. specialist should happen quickly, and be followed with some xrays, barium follow through (drink a chalky yet kind of tasty substance followed with some xrays), maybe a CT scan, then a colonoscopy, if the doctor keeps throwing stuff at it without knowing what it is...***?!
Tests I've had:
5-6 colonoscopies (lost count), Barium follow through, Barium enema, 2-3 CT scans, plenty of xrays (lost count)
Prednisone (started at 40mg stepping down) been on this one 3-4 times
Tried Imuran, no good
Would try remicade if I had coverage ($2500 per 2 hour IV :P)
Herbal remedies tried:
4Life Transfer Factor Plus (2 bottles at 3x recommended dosage)
Primal Defense (3x dosage recommended...yuck)
Many different probiotics including:
    VSL #3 (450 billion live bacteria!)
    Primadophilus Optima
Omega 3 Oils (caps and liquid)
GNC liquid multi (had to get this one from the US)
Paraway Parasite Cleanse (2 in a row)
New Roots Herbal Parasitis Kit (2 in a row)
Liquid Aloe Vera Juice (2x1oz. per day)
Just ordered Mastic Gum capsules (120x1000mg) and Mastic Gum pure from the tree (10gr. bag)

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